TorturedSoul Posted March 8 Report Share Posted March 8 So I most likely have hypocapnoc cerebral hypoperfusion. Why the doctor didn't formally diagnose this and just told me "to follow up with my neurologist" is beyond me. I looked at the testing results which said "hypocapnic hyperventialtion" and 18% cerebral blood flow decline upon standing. For those with this diagnosis, did he not formally diagnose this because the drop didn't meet a cut off? 18% seems like a significant decline and explains everything I've been saying to doctors (there is something wrong with the blood flow to my brain) Any treatment options? Has anyone seen a specialist familiar with this or anyone that specializes in Dysautonomia that will at least trial medications given this information? I have to be honest, I'm not impressed with how I was treated. The dr basically sent me on my way knowing I have these issues. He barely spoke to me during testing either. Felt like a lab rat. Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted April 5 Report Share Posted April 5 @TorturedSoul, I’m sorry to hear that the doctor doing the testing wasn’t very communicative and didn’t suggest any follow-up. I think there are one or two folks diagnosed with HYCH here. I could only hope that the doctor who did the testing sent instructions to your neurologist on what to do. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.