Update on Today's Appointment!

[SunsetParadise49]

Well just got back from my pediatric cardiologist, Dr. Consevage. He wrote me a prescription for compression stockings, Celexa 20mg and Phenobarbital 15mg (he said that some doctors at the Mayo Clinic prescribe it for insomnia) (here's a link I just found...it's kind of interesting: Phenobarbital

While we were there my brother got an ECHO, and everything seems to be normal with his heart which is good since I have EDS as well as himself!

Have any of you ever taken Phenobarbital? He said it might not work and to give it a good 10-14 day trial and see what happens! Well going to be going now, hope you all are having a good day!!!!

Gwendolyn

[Rita]

Not sure about the med , but wanted to say congrats on the good news. I hope the med helps you out!!!

Rita s

[morgan617]

I haven't heard of it being used for sleep, but so many drugs nowadays are being used for out of target stuff, it doesn't surprise me. morgan

[Sunfish]

i haven't tried it myself, but have heard of it for sleep. a doc who i trust A LOT mentioned it to me as a possible thing to try since lunesta doesn't seem to be helping me much....you'll have to let us know how it goes.

i hope the new meds work well for you!

melissa

[goldicedance]

At one time many years ago, my cardiologist had me try phenobarbital. That is a drug used to help with POTS in some people. It did not work out for me. I do remember taking it before bedtime and I slept like a charm.

[SunsetParadise49]

That's great to hear for those of you who did try it and who actually slept! That's what I need and that's the only reason I'm on it. My doctor said that he knows about it because some of the Mayo Clinic doctors prescribe the lowest doseage for POTS paitents and their insomnia! I just hope it works for me!!!!

[HoldOnToHope]

My daughter's Mayo doc recommended she try melatonin for sleep. She's used a low dose [2.5] it for 4 days and it is working. You might want to ask your doctor about trying it if the "pheno" doesn't work.