Sea otter Posted June 15, 2023 Report Share Posted June 15, 2023 A lot of people (including me) are experiencing "adrenaline surges". This is less known symptom of POTS but I think very important, especially for newly diagnosed. I have found at few places it is called adrenaline surge. But some are saying this is not real adrenaline surge. So how to call it? Is there proper name for it? Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted June 15, 2023 Report Share Posted June 15, 2023 I watched a lecture with Dr Satish Raj in which he addressed this in the Q&A section. (I think it was Satish Raj – it might have been Dr Nick Gall. I watched a lot of their lectures a while ago.) Anyway, whichever expert it was explained that although autonomic specialists and patients know what “adrenaline surge” as a symptom refers to, nobody has measured anyone’s adrenaline levels during one of these episodes. So unfortunately we don’t know for sure that these unpleasant episodes involve a surge of adrenaline. You can see that this would be hard to study. You would have to get a bunch of patients who experience these episodes together and keep them at a test facility all day, maybe even overnight because some people get them during sleep. And then you would have to wait for the episodes to occur and quickly take a blood sample. So you’d have to book a dormitory for the test subjects, and have a phlebotomist on standby 24 hours a day. Another option would be to give people a blood test order to use at a pathology collection centre and have them rush to get blood taken when an episode happened. But that would be very hard for people to do, and collection centres usually only open 9–5, so that’s another limitation. So it’s very hard for doctors to study this symptom or write about it with no data. (Or give it an official name!) Quote Link to comment Share on other sites More sharing options...
Sea otter Posted June 15, 2023 Author Report Share Posted June 15, 2023 @Sarah Tee Thank you so much for taking time to explain. I guess 'adrenalin surge' is common name for this symptom among patients. But it's confusing as I see online everywhere it says adrenalin surge, I thought at first that this is official name for it. Quote Link to comment Share on other sites More sharing options...
MTRJ75 Posted June 15, 2023 Report Share Posted June 15, 2023 I've heard it referred to as an adrenaline dump too. It FEELS more like a surge though. The feeling can also be very hard to explain though too. Quote Link to comment Share on other sites More sharing options...
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