MikeO Posted May 23, 2023 Report Share Posted May 23, 2023 Not sure how to go about discussing issues. From a data standpoint is the obvious labile blood sugars and symptoms that comes along with it. So what does a endo all handle or look at? I am hesitant just to go in to the visit and just saying i don't feel good or even bring up me suspecting dysautonomia as the root of some of my diabetes/GI issues. Use autonomic dysfunction instead? Pyridostigmine does seem to help stabilize my BG/GI just not perfect. Do i dare bring up that my orthostatics are 10 times worse when my blood sugars are elevated (not sure if diabetes is a actual cause for OH episodes) or suggesting a dysfunctional pancreas causing digestive issues. Any tests that i should be aware? Just looking to be a bit smarter ahead of the visit Thanks for reading. Quote Link to comment Share on other sites More sharing options...
MikeO Posted May 23, 2023 Author Report Share Posted May 23, 2023 well update i did get in quickly to see endo (tomorrow). wonder if a doc has a doc in their back pocket Haha. Quote Link to comment Share on other sites More sharing options...
Pistol Posted May 24, 2023 Report Share Posted May 24, 2023 @MikeO an endocrinologist deals with all the mentioned issues - insulin, neurotransmitters, GI issues .. I would bring a list of everything you want him to address, including how you feel when your sugars are abnormal. I definitely would mention your nOH but likely he will concentrate on the diabetes. Good luck, keep us posted! Quote Link to comment Share on other sites More sharing options...
MikeO Posted May 25, 2023 Author Report Share Posted May 25, 2023 well saw the Doc yesterday (sigh) we did discuss issues. He did go into that autonomic dysfunction can and will mess with one's body functions so in his area meaning the pancreas (bile and insulin) so does he know for sure if the ANS is at fault no there are other reasons just one step at a time. At first he was not onboard that i was diabetic (i was warned that this could happen) as my A1c is 5.6 but after digging thru the MyChart labs and me showing all the data that i collected he changed his mind and ordered additional blood work. he is looking for the type 1 diabetes antibodies as my liable BG swings (said this was messed up) mimic late occurring T1 DM more than T2 DM. He also did a quick exam and provoke a response when when pressing on the right side of the throat and having me swallow. not sure what this shows but i almost threw up and was not able to comply with swallowing. we did also discuss GI issues and he recommends going in to see a gastrologist. for now he won't order any DM meds as most are not very GI friendly or had other concerns so he urged to stick with a low carb diet. Right now i am stressing a bit waiting to see visit notes and lab results. Quote Link to comment Share on other sites More sharing options...
Pistol Posted May 26, 2023 Report Share Posted May 26, 2023 @MikeO sounds like he is doing the right things. By pressing on the right side of the throat he probably provoked a vagal response. And it is really a good idea to see a gastroenterologist, I am surprised no one referred you yet! Hang in there, stick to your diet ( which you are doing such a great job with ) and be patient! Hugs. Quote Link to comment Share on other sites More sharing options...
Sarah Tee Posted May 26, 2023 Report Share Posted May 26, 2023 @MikeO, I am glad he looked at your data and is investigating. Also now you have taught him that A1c is not necessarily the full story! Quote Link to comment Share on other sites More sharing options...
MikeO Posted May 29, 2023 Author Report Share Posted May 29, 2023 well antibody labs came back. one is questionable as low positive. no panic for now as my very low carb diet is working. sure i will find out more in september. Glutamic Acid Decarboxylase Antibody 5.0 IU/mL IA-2, Autoantibody 5.4 U/mL Insulin Antibody 0.4 U/mL Quote Link to comment Share on other sites More sharing options...
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