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Dawson

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I’m looking to travel to Denver, I haven’t had POTS long so I was wondering if anyone else has experience with this altitude as I’m from Illinois. I know with weather changes I can get a bit more dizzy and more problems with rapid heart rate but that’s about it 

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Hello @Dawson I usually do better with high elevations than low elevation. I live in a mountainous region and when I travel to the ocean ( obviously at sea level ) I become very ill. I would just prepare by resting before hand and by drinking a lot of fluids. Be safe!

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I think any environmental change can cause symptoms for us.  

I did OK going from sea level to Denver in the past.  However, I definitely noticed the elevation (as many people do anyway).  I felt slightly more dizzy (than normal!), and noticed more tachycardia.  When I went to over 10K ft while there (and also on a trip to Peru years ago) I felt pretty badly--headache, dizzy, fatigue-- until after a few days of adjustment.  Gradual changes in elevation are best, along with rest/minimizing any strenuous activity in the first days, to allow your body time to adjust.  Also fluids are very important.  It's easy to get dehydrated in a drier environment and also at higher elevations.

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  • 4 months later...

Hi, 

I would like to know some tips you could please offer on transatlantic/long flight travel with dysautonomia. I was diagnosed last year and have been in treatment since then and my symptoms are usually under control. I've taken short flights (the longest has been 5 hours) and have been okay - but I need to visit family on the other side of the world and was wondering if anyone in this forum has experience/specific recommendations for longer, 10+ hour flights? 

Thank you in advance!!

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  • 9 months later...

My SpO2 drops faster than normal people's would at altitude, but that's about it. I notice it when I'm flying, but it doesn't really bother me.  I do keep an eye on it though.  Just make sure you do get up and walk around as much as you can when at altitude and give yourself plenty of time to rest as well.  You might find that you tire a bit more easily than usual, but you'll adjust.  

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  • 2 months later...

From my experience, taking it slow and resting can help with dizziness and a fast heart rate when you go up to higher altitudes.
If you love outdoor activities, you might like checking out other beautiful places too. For example, in Northern California, there's this great the Lake Clementine Guide that talks about all the fun things you can do at Lake Clementine, like kayaking and paddleboarding. It's a really pretty spot and perfect for anyone who enjoys being outdoors.

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