Grammylm Posted February 1, 2023 Report Share Posted February 1, 2023 Hi everyone! I have just had a relapse in my pots. This time around my blood pressure is low when I stand for just a min. I'm getting older and I was doing ok for about 3 years. Now I'm bedridden. No Dr really knows how to help me and I don't tolerate meds well. I have been on xanax for over 10 years which did help and Phenergan for nausea. Since my blood pressure drops now and my heart rate goes about 55 bpm within a minute of standing i don't know what to take. I was given paxil to try and the dr said i may feel worse at first. well that's not something i wanted to hear. Just wondering if anyone had any advice on what meds helped them and did you have low blood pressure? Thank you for any help! I have no quality of life. Quote Link to comment Share on other sites More sharing options...
JennKay Posted February 1, 2023 Report Share Posted February 1, 2023 @Grammylm -- sorry to hear about your relapse. That stinks and is so frustrating!! I also struggle to keep my BP "normal" and just discovered Vitassium. Have you tried salt tablets yet? I also use Florinef, but honestly, I think Vitassium works better. I also use LMNT, which is an electrolyte packet. It is marketed as keto friendly, which is great b/c it doesn't mess with my blood sugar. Those two, Vitassium and LMNT, are the best electrolytes I've found for me...and I've tried a lot at this point. Finally, I wear waist high compression tights ever day, 20-30mmHg. I put them on when I wake and don't take them off till I get ready for bed at night. I like the Jomi brand you can buy on Amazon -- they aren't "grandma" tights and come in different colors, with and without toes, etc. Oh, and since it is winter in my area I've been sipping on broth when I get tired of electrolytes and want something warm. There are a lot of great flavors and types you can get at the grocery store - bone broth, flavored broth, etc. Can make your own broth too! Quote Link to comment Share on other sites More sharing options...
MaineDoug Posted March 15, 2023 Report Share Posted March 15, 2023 I also struggled with this. I have experienced great relief by drinking 7+ liters of water day and night, and weekly IV hydration. Hope you are feeling better! Quote Link to comment Share on other sites More sharing options...
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