Guest Julia59 Posted August 25, 2005 Report Share Posted August 25, 2005 I have an appointment at The Spine Institute at The Cleveland Clinic on Sept. 9th.I'll be seeing Dr. Venesy. She is in Physical Medicine and Rehabilitation Staff Main Campus Spine Institute Staff Main Campus appointed: 1999 medical school: Wright State University School of Medicine Dayton, OH specialty training: Internship - Mount Carmel Health System - East/West Columbus OH Residency - The Ohio State University Hospitals Columbus OH other education: B.A. - Ohio Wesleyan University Delaware OH specialty interests: evaluation and management of neck and back pain; electromyography; management of occupational conditions and illnesses; rehabilitation of neuromuscular disorders.Anyway, after talking on the phone with a couple of nurses that didn't seem to have much of a clue where to put me---i.e.---> neurology, Neurosurgery, spine center------ect. I ended up getting appointed to the spine center.I was laying in Bed this morning and a rather rude nurse called me. I was trying to get my faculities after sleeping over 9 hours. Lately after not being able to sleep very well---I suddenly seem to sleep---too well. Depression has set in pretty heavily lately, and I don't want to get out of bed in the morning. I can usually snap out of it, but that last few days have been kind of rough----I just want to lay there and dream about another life----or just sleep and dream. Once i'm up it's not too bad, but i'm still not my old potsy self.The numbness and weakness is progressing along with the fatigue. I thought I should finally go to the Cleveland Clinic. But after telling them all my health issues, they didn't seem to know where to put me, so they started with the Spine Institute. The nice nurse from yesterday's phone call said this doctor is also trained in neurology. Hopefully there will be a less invasive way to handle my neck issues.I have been told that due to the mylopathy that I need a full cervical laminectomy.I trust the NSG's diagnosis, but I want to see if there is some time to buy before I decide on surgery. It doesn't look good right now as typing this is even difficult.I suppose i'm "functionally" depressed. The idea of a big invasive surgery like that is pretty scarey. I just don't feel like my present health status could handle over 6 hours of anesthesia. But at the same time my condition progresses at a scarey pace. Almost with every movement I feel the unsteadyness of my upper and lower spine. I can usually motivate myself and get a few things done, but now things seem to take forever as my limitations are increasing.And of course this stupid wound from the minor surgery (cardiac loop recorder) still has not healed---almost a month now. It's doing better, but still hurts. Tomorrow i'll go for a reading as I had a couple of episodes----but i'm not sure if they were anything. The one on Saturday might show something as it was difficult to breathe.Dr. Grubb's nurse practioner told me the Niaspan is not the drug of choice for POTS patients to raise HDL levels of cholesterol. She said it's a vasodilator----i'm guessing not too smart for POTS patients. So now I have to call my PCP again to tell her I can't take that drug. Meanwhile the NP in Dr. Grubb's office said the cerefolin might help raise the HDL.I'm just disgusted, and fear that i'm going into another dead end. Julie ---------- Quote Link to comment Share on other sites More sharing options...
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