Garden Gal Posted October 6, 2021 Report Share Posted October 6, 2021 Hi all. Any advice on who to see to rule out vascular EDS in Oregon or Washington? My PCP has been fabulous - has done initial EDS screening score and sent me a load of info, gotten me in with cardiology etc but our local teaching hospital treats hypermobility types rather than doing specific vascular gene testing. Help? Ideas? Tks Quote Link to comment Share on other sites More sharing options...
MTRJ75 Posted October 6, 2021 Report Share Posted October 6, 2021 I have a close friend who has this and ironically, we always remark how we don't have nearly the same symptoms. Anyway, his wife does some volunteer work for some foundation and was contacted by a Dr. Sherene Shalhub out of Seattle, who happens to be a vascular EDS specialist (I think), who volunteered to take on his case. I hope this is helpful. Quote Link to comment Share on other sites More sharing options...
Garden Gal Posted October 7, 2021 Author Report Share Posted October 7, 2021 5 hours ago, MTRJ75 said: I have a close friend who has this and ironically, we always remark how we don't have nearly the same symptoms. Anyway, his wife does some volunteer work for some foundation and was contacted by a Dr. Sherene Shalhub out of Seattle, who happens to be a vascular EDS specialist (I think), who volunteered to take on his case. I hope this is helpful. Dr. Shalhub looks like a promising option. Thank u so much Quote Link to comment Share on other sites More sharing options...
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