Has anyone been diagnosed with an CSF Leak and if so, what were your symptoms?

[CDNPortGrl]

Hello everyone,

I'm just curious to hear from those of you who had an CSF leak diagnosed - or even if you suspect one as that could be helpful. What were/are your symptoms? When I look into it, the main 'thing' is postural headaches. Was this what you endured? I used to have migraines but they vanished. I don't feel any different sitting up (except the heart issue). Today my left ear feels blocked but it hasn't been like that in well over a month. I have a stuffy runny nose in the mornings but not the rest of the day. I've had only two days of Tinnitis since this nightmare started. Obviously I have POTS (which is why I'm on this forum), but it strikes me that people with CSF leaks also have the tell-tale headaches that accompany the POTS. As people are so unique in their symptoms, I think a forum such as this would offer more insight into how the general public reacts and is likely a more useful source of 'what to look for'. Thanks!

[toomanyproblems]

We had a forum member from the UK (I believe) who was a physician. She suspected early on after her POTS-like symptoms began that it was a CSF leak. She definitely had convincing symptoms to indicate a CSF leak, including the tell tale postural headache. Even so, it seems like it took her a long time to finally get the proper help.  Her moniker was bombshell. IDK if she's still on this forum but if you enter bombshell as a search word, you can probably access her posts. She was very informative.

[CDNPortGrl]

This is great! Thanks for the information 🙂. I will look this user up.