cattale Posted August 16, 2005 Report Share Posted August 16, 2005 I have a bad case of POTS and possible Autonomic FAilure. I have to travel to TN in October to the Vanderbilt Clinic, and i'm not sure how flying effects us. Can people with Autonomic Dysfunction fly safely, or is it dangerous? Quote Link to comment Share on other sites More sharing options...
Sunfish Posted August 16, 2005 Report Share Posted August 16, 2005 (edited) hi cattale - i'm not sure if we've met before, so if not...hello! i was actually at vanderbilt myself in may so if you have any questions feel free to PM or email me. i have autonomic neuropathy, OI/POTS, NCS, & other "fun" that some thought constituted a PAF diagnosis but ended up being grouped under a progressive neuropathy heading. no place is perfect & there isn't a magic answer, but overall i had a good experience at vanderbilt. i wrote a "book" of sorts upon my return if you want the inside scoop before you go. the link is:http://dinet.ipbhost.com/index.php?showtopic=2769regarding flying, i don't think i would call it "dangerous" more so than any triggers but some do have a lot of trouble with it. there have been quite a few discussions on it in the past which i have posted below. i did have to fly to TN a few days prior to my admission though b/c i wouldn't have been able to sit up long enough off of my meds (so i went a few days early to wean off my meds there). i've also used a wheelchair at the airport for years...this year it wouldn't have been an option for me b/c i wouldn't have made it to the plane otherwise; in the past it was largely b/c i couldn't deal with security lines, etc. & had had bad experiences of being yelled at for kneeling/squatting down in the lines.hope this helps,:-)melissaon flying:http://dinet.ipbhost.com/index.php?showtopic=2999http://dinet.ipbhost.com/index.php?showtopic=2946http://dinet.ipbhost.com/index.php?showtopic=2499http://dinet.ipbhost.com/index.php?showtopic=2519http://dinet.ipbhost.com/index.php?showtopic=2856http://dinet.ipbhost.com/index.php?showtopic=2092http://dinet.ipbhost.com/index.php?showtopic=226http://dinet.ipbhost.com/index.php?showtopic=1771http://dinet.ipbhost.com/index.php?showtopic=358http://dinet.ipbhost.com/index.php?showtopic=1140 Edited August 16, 2005 by Sunfish Quote Link to comment Share on other sites More sharing options...
goldicedance Posted August 16, 2005 Report Share Posted August 16, 2005 Hi...I have flown numerous times. I wear compression hose, drink plenty of water before I fly, and keep drinking water on the plane. It is important to get up and walk a few times, if possible, to reduce the possibility of blood clots. I have asked the airline to provide wheel chair service during episodes when my POTS is in a flare. Welcome aboard! Quote Link to comment Share on other sites More sharing options...
hockeykid Posted August 17, 2005 Report Share Posted August 17, 2005 I have flown once since I got sick. It completely destroyed me for a week after but otherwise it was ok. I got a wheelchair for the airport security line and that went great! Other than that, all I have to say is drink, drink, drink! Quote Link to comment Share on other sites More sharing options...
cattale Posted August 17, 2005 Author Report Share Posted August 17, 2005 Hi everyone, thanks for the stories. Unfortunately, i'm afraid it's going to make sick as a dog. I'll try to be optimistic, though. Thanks for the links to check out, too. I'm going to buzz you Sunfish regarding the Vanderbilt trip. Quote Link to comment Share on other sites More sharing options...
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