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Hey lovely people 

BP this morning on sitting was 88/58 and my pulse raises by 32 on standing but BP barely changes. It's always been low but not normally as low as this. 

I don't know if it's a lockdown sedentary thing but I've been really struggling the past two months with huge crashes after I eat - can't move for 4 hours and go into a practically passed out sleep - then I pop out of it fatigued but very strung out. I'm now eating a few forks of food then leaving it a while, and recently am lying while eating and making sure I don't attempt food if I've been on my feet or sitting for a while. Lie and rest first. Am grain and carb free or else it's impossible - and I get heavy fatigue the next day too. 

Does anyone else find that lying down with your legs raised before eating - nibbling to be more realistic - helps? Wondering if there are any other tips at all ? It can all go wrong so quickly. 

I am drinking litres of water a day. Salt is 10g a day. I'm speaking to my POTS specialist in two weeks and I want to talk about meds to help me too. What's a good option have you found best? 

I have MCAS too and am on antihistamines and sod crom. 

Thank you 

Emma 

 

 

 

 

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  • 4 months later...

Hi Emma

Hope you're well.

I have found that I also have reactions to eating, particularly swelling across the body (most noticeably in the legs). Is this something you also experience? Did your POTS specialist shed any light on this?

Thanks

Claire

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