Nin Posted May 17, 2020 Report Share Posted May 17, 2020 I've been advised to wear compression stockings but wondering if it is ok to wear if you have Hypet pots? Don't hyper type pots cause too much constriction in the blood vessels and do these stockings constrict the blood vessels?? I'm not really sure what these stockings do and if they can help with hyper pots. Any advice would be appreciated Quote Link to comment Share on other sites More sharing options...
Pistol Posted May 17, 2020 Report Share Posted May 17, 2020 @Nin - as far as I know compression stockings are good for hyperPOTS as well. They will make it easier for the heart to pump the blood, so they can prevent ANS dysfuction ( which is a faulty way for the ANS to compensate for the inability to create adequate pressure in the vessels ). Unless you have issues with circulation in your feet I think you should try them if your doctor agrees. they are commonly used for treatment in POTS ( regardless of type ). Quote Link to comment Share on other sites More sharing options...
Nin Posted May 18, 2020 Author Report Share Posted May 18, 2020 1 hour ago, Pistol said: @Nin - as far as I know compression stockings are good for hyperPOTS as well. They will make it easier for the heart to pump the blood, so they can prevent ANS dysfuction ( which is a faulty way for the ANS to compensate for the inability to create adequate pressure in the vessels ). Unless you have issues with circulation in your feet I think you should try them if your doctor agrees. they are commonly used for treatment in POTS ( regardless of type ). Yeah I thought that was the case that they would be good for all types. I thought I better check in case I was advised not to. I've had a terrible day with these siezures. I get a warning one is coming and today it even happened lying down in bed. It has never happened lying down. When I felt something was coming I took my hr/bp and both were sky high (bearing in mind I'm on beta blockers). That's why I wanted to check about the stockings because I know you said about too much vasconstriction with hpots and you need vasodilation, so was worried stockings would cause vasconstriction. What would cause too much vasconstriction for me? I was just having a normal day watching TV not stressed. I was eating peanuts (which I'm not allergic) I started to feel nauseous and it all just tumbled from there. Was really lazy with the drinking water today, I drank 2 pints less than I normally would. Quote Link to comment Share on other sites More sharing options...
Pistol Posted May 18, 2020 Report Share Posted May 18, 2020 @Nin - I am so sorry you are having such a bad flare. I used to get seizures lying down as well when I was bad, sometimes with very little warning. 9 hours ago, Nin said: What would cause too much vasconstriction for me? I was just having a normal day watching TV not stressed. I was eating peanuts (which I'm not allergic) I started to feel nauseous and it all just tumbled from there. Was really lazy with the drinking water today, I drank 2 pints less than I normally would. Most of the time I don't know the trigger that set off my symptoms. Has it been hot, humid or changing weather? These all can be triggers for me. Heat and sudden changes in barometric pressure mess with my ANS. So do allergies - it is allergy time here now and I have to take Claritin or I get very bad. Insect bites will do the same. Hormonal changes, such as menstuation, can also cause it. Pay close attention to what is going on the days when you are bad - that way I was able to come up with triggers and can try to avoid them. In cases that are beyond my control, such a weather changes, I simply hang low and wait them out. Drinking less water can be bad when you are not well, so I would try to drink up 😣! My seizures became less frequent when I had to stop working and was able to adjust my day around POTS, taking breaks or even staying in bed if needed. Finding the right meds was crucial - but what helped me most of all are regular IV fluids. Thanks to these I RARELY ever have seizures or syncope and my Quality of life has greatly improved. They are controversial to some docs but are also used by autonomic specialists for flares, such as you experience. Prior to getting a port and weekly infusions my doc would prescribe them during flares and they ALWAYS stopped the symptoms. BP would drop immediately, tremors would subside, I would be able to get up and move around without passing out - or even getting dizzy. Once you find a capable specialist you may be able to bring this up, as I said it is a common treatment for POTS in some cases. Quote Link to comment Share on other sites More sharing options...
Nin Posted May 18, 2020 Author Report Share Posted May 18, 2020 14 hours ago, Pistol said: Most of the time I don't know the trigger that set off my symptoms. Has it been hot, humid or changing weather? These all can be triggers for me. Heat and sudden changes in barometric pressure mess with my ANS. So do allergies - it is allergy time here now and I have to take Claritin or I get very bad. Insect bites will do the same. Hormonal changes, such as menstuation, can also cause it. Pay close attention to what is going on the days when you are bad - that way I was able to come up with triggers and can try to avoid them. In cases that are beyond my control, such a weather changes, I simply hang low and wait them out. The weather is pretty mild here at the moment so not too hot. I think I need a diary and at least I can go back over the days these siezures happened and compare. It's unfortunate here in the UK don't offer IV fluids. Thanks for your reply 😊 Quote Link to comment Share on other sites More sharing options...
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