MeganMN Posted December 8, 2018 Report Share Posted December 8, 2018 I am heading to the Cardiologist on Tuesday for my first Cardiology evaluation after being diagnosed by a Hospitalist a month ago. I have been on Metoprolol with reduction of symptoms but feeling super tired. I am trying to compile a list of questions for the Cardiologist so that I can really come away with a plan. Would love some help/suggestions on things that might be important to ask! Here is what I am thinking so far: - Should I see an Electrophysiologist? - Would a Holter/Event Monitor be at all indicated? - Should any further testing be done to determine type of POTS (Hyper, Neuro, etc) before adding more treatment/medication? - Is another Beta Blocker something we could try (Propranolol, Ivabradine, etc)? - Since this was thought to be viral onset, what, if anything, should I do in the future with illnesses, to prevent/minimize symptoms? Would love suggestions on other things that may be important to ask that I am not thinking of. Thanks so much! Quote Link to comment Share on other sites More sharing options...
StayAtHomeMom Posted December 8, 2018 Report Share Posted December 8, 2018 Personally I think that is a great start. You seem to be way more prepared then I was. Then again I was looking for confirmation of POTS from my cardiologist so I imagine my questions would have been a lot different. Only thing I can think to add would be compression. Some people on here like them. I haven't tried them. Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted December 9, 2018 Report Share Posted December 9, 2018 You may want to be tested for vitamin deficiencies. There are studies linking POTS to vitamin D and B12 deficiencies, and also low iron, it would not hurt to rule these out. Quote Link to comment Share on other sites More sharing options...
MeganMN Posted December 12, 2018 Author Report Share Posted December 12, 2018 Well, saw the Cardiologist today and he is wanting to taper me off the Metoprolol, start Florinef, and follow up in a week. He may add Propranolol at that time, but of course, I had no symptoms at the time of my appointment, which is crazy, because I had been tachy all day up to that point! Do any of you find symptoms only manifest or are worse in the morning? I am super nervous about the Florinef as it seems like it would potentially cause some adrenal insufficiency, but will give it a go. Are there many of you that found success with just the Florinef and no other meds? Quote Link to comment Share on other sites More sharing options...
StayAtHomeMom Posted December 12, 2018 Report Share Posted December 12, 2018 I have not tried florinef. But I have noticed most people with POTS seem to be worse in the morning. I am actually the opposite. I feel worse in the evenings. But I would say 75% of people seem to be worse in the morning. Glad your appt was productive. Quote Link to comment Share on other sites More sharing options...
angelloz Posted December 12, 2018 Report Share Posted December 12, 2018 The morning has always been the worst for me! Quote Link to comment Share on other sites More sharing options...
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