janineerrn Posted July 19, 2005 Report Share Posted July 19, 2005 Hi Everyone,Hopeit was a good day!I am sorry to vent and then ask a questionbut I am braindead and tired and so much is going on.Fighting for FMLA at work because my1 year date was May 25 and i went out on med leave on 3/19. I worked oer 1250 hours and I was still receiving company benefits past my med leave date (I thinkthis is the last month of both STD and Med insurance if i dont win this fight) = No money.Youknow how much my meds cost, tryingto get the 3 month mail order refill thing done but my meds are written by so many different doctors and one wont write one RX another wont write the others RX and they all want me to come in to visit for refills and I have too keep up with side effects and all the copays for each doc to get an RX then to get a 3 month refill, and then just getting to the doctors not to mention I may not hae insurance August 1st.Applying for social security, cant find one doc to help do all the medical documentation, trying to get all evaluations in b4 insurance runs out. Still not sure what I need to prove to SSI, they can come live with me for a week.Trying to keep medical records together, and get them, because when i was at Duke they kept my copies instead of getting thier own so now Im gathering 3-4 years worth of medical records. Trying to keep up with medical miles and out of pocket expenses for taxes.Trying to keep household together (hah) at least hubby is starting to see the light after a lot of conflict and role changes. At least my 19 year old daughter painted my toe nails purple for me. Im almost in a size 10 was wearing a 14 last year. Thank God for thrift stores or Id be wearing me some suspenders.Ok Im sorry, I could go on but Ill spare you, most of you know the drill.The question, Please give me some good links to excellent info on NMH POTS that I can print out and give my doc. Im going back to the adult cardiologist. The first cariologist diagnosed me but says he cant do anything else for me. My family doc, whom I love, cant really treat me she is family practice. The pediatric cardiologist who knows POTS and understands, and cares cant help me with disability.This is the cardiologist i went to who said she never heard of an autonomic disorder being so severe. I really like her but want her to understand. I am going to suggest she call Dr. Boris the pedi cardio, but Id like to give her written info too.Thanks AllIm kinda high strung and anxious right now. Quote Link to comment Share on other sites More sharing options...
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