Pistol Posted June 11, 2018 Report Share Posted June 11, 2018 I just received an email from my sister in germany with an article about a new exciting study. Dr Haensch ( listed on this websites physician list ) is a renowned autonomic specialist in germany and he just received an award for a revolutionary finding : he discovered that in some POTS patients the nerve endings of the sympathetic nervous system that serve the cardiac muscle are MISSING!!!!!! All of the patients with the missing nerve endings had tachycardia, dizziness, palpitations, syncope and/or presyncope. This finding finally proofs that POTS is NOT a psychological condition. --- I only have the article about the study and it is in german but I am sure there is an English article somewhere. As I said - the doc is listed here. Quote Link to comment Share on other sites More sharing options...
p8d Posted June 11, 2018 Report Share Posted June 11, 2018 Thanks so much for sharing this! I would love to see the English transliteration if you find it. Quote Link to comment Share on other sites More sharing options...
TCP Posted June 12, 2018 Report Share Posted June 12, 2018 You've actually described Small Fibre Neuropathy which is present in people with Autonomic Dysfunction, Ehlers-Danlos, POTS etc. There is small fibre loss and it affects the organs and skin. There's a lot of information about this online and many research studies. Quote Link to comment Share on other sites More sharing options...
Pistol Posted June 12, 2018 Author Report Share Posted June 12, 2018 @TCP - in the article they stressed the discovery of cardiac denervation through SFN - the sympathetic nerve endings are actually missing!! I have to see if I can translate the article and post it here. Quote Link to comment Share on other sites More sharing options...
TCP Posted June 12, 2018 Report Share Posted June 12, 2018 4 hours ago, Pistol said: @TCP - in the article they stressed the discovery of cardiac denervation through SFN - the sympathetic nerve endings are actually missing!! I have to see if I can translate the article and post it here. Yes, that is right, in SFN some of the nerve endings are absent. Utter absence of these nerve fibres is indicative of advanced small fibre neuropathy. I have autonomic dysfunction, POTS and widespread SFN. I have permanent tachycardia. Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.