Exciting new POTS research

[Pistol]

I just received an email from my sister in germany with an article about a new exciting study. Dr Haensch  ( listed on this websites physician list ) is a renowned autonomic specialist in germany and he just received an award for a revolutionary finding : he discovered that in some POTS patients the nerve endings of the sympathetic nervous system that serve the cardiac muscle are MISSING!!!!!! All of the patients with the missing nerve endings had tachycardia, dizziness, palpitations, syncope and/or presyncope. This finding finally proofs that POTS is NOT a psychological condition. --- I only have the article about the study and it is in german but I am sure there is an English article somewhere. As I said - the doc is listed here. 

[p8d]

Thanks so much for sharing this!  I would love to see the English transliteration if you find it.  

[TCP]

You've actually described Small Fibre Neuropathy which is present in people with Autonomic Dysfunction, Ehlers-Danlos, POTS etc. There is small fibre loss and it affects the organs and skin. There's a lot of information about this online and many research studies. 

[Pistol]

@TCP - in the article they stressed the discovery of cardiac denervation through SFN - the sympathetic nerve endings are actually missing!! I have to see if I can translate the article and post it here. 

[TCP]

4 hours ago, Pistol said:

@TCP - in the article they stressed the discovery of cardiac denervation through SFN - the sympathetic nerve endings are actually missing!! I have to see if I can translate the article and post it here. 

Yes, that is right, in SFN some of the nerve endings are absent. Utter absence of these nerve fibres is indicative of advanced small fibre neuropathy. I have autonomic dysfunction, POTS and widespread SFN. I have permanent tachycardia.