Are any of you being treated for POTS by your gp?

[joiedevivre]

My cardiologist diagnosed me, because I insisted on a tilt table test ( he insisted I didn't need one), but he knows nothing about POTS. He's also unwilling to learn, I can't imagine him doing research or being ok with me bringing him papers for example, and he won't let me talk about my illness or symptoms. He's not any kind of partner. 

However I'm having trouble finding a doctor in my city that knows about pots and accepts my insurance. I was wondering if my gp can manage my treatment until I find a pots doctor? Do any of you get treated by your gp? I think my gp is willing to learn and also listens to me even if he doesn't have specialized knowledge in cardiology. Thanks for any advice or experiences you have to share. 

[Pistol]

I saw my PCP from the onset of symptoms and he helped me through all of the (5) cardiologists that did not know anything about POTS and messed up everything by prescribing stupid useless meds. I was referred to an autonomic specialist out of state, that took 1 year waiting. In the meantime my PCP was by my side, fighting with and for me and learning about POTS along the way. He did not know anything about dysautonomia at first but that did not stop him from treating me - he is wonderful and still my #1 doc. So - yes, you can be treated by a GP as long as he knows about POTS. Treatment id frustrating because it takes so much hit-and-misses. Good Luck - check on the physician listing on this site -maybe there is someone listed on there that is close to you? 

[niftyusername]

Hi, there!

My EP cardiologist also diagnosed me and insisted I go to a PCP.  The problem is that I always used my OB/GYN as my PCP which was allowed by the insurance I carried.  So, I went to find a "regular" PCP.  I went to one I found through on of the doctors I had worked with before... long story short, the nurse practitioner said I looked fine and sent me on my way.  Meh.  So, I went back to the cardiologist to his dismay until finally I went to my neurologist from years ago when this mess started.  The long-winded moral of the story is finding a physician that actually knows a bit about the disorder and who is willing to help.  You won't find may folks that are willing, from my experience, but I hope you have better luck than me.  Is there a neurology clinic in your town or nearby?