Pistol Posted May 2, 2018 Report Share Posted May 2, 2018 Hi - I have hyper-POTS, so do my mother and sister. My 13 year old daughter has passed out in the past and has intermittent tachycardia but nothing too alarming. Recently she had a sports injury and has been passive for 3 months ( usually very active ). Now she often complains of chest pain, shortness of breath and dizziness and when I check her Pulse it is racing and irregular. When she gets out of the shower her feet are bright red. She also has asthma so I her PCP said not to give her her inhaler for the breathing due to the tachycardia. In the past she had a holter that showed sinus tachycardia. Since I am disabled from POTS and often bed ridden she is very scared to get it also. I do not want to worry her too early but I am wondering if I should take her to my autonomic specialist? Is it too early? Should I wait for more severe symptoms before I go that route? For now I have told her to drink a lot and eat more salt. Does any one here think I am over reacting with my concerns or am I right to suspect POTS from those symptoms? Quote Link to comment Share on other sites More sharing options...
Shannoncr Posted May 2, 2018 Report Share Posted May 2, 2018 Hi, I don’t think you’re overreacting, for what it’s worth. I haven’t been diagnosed with POTS nor do I have an autonomic specialist so I don’t know how invasive/traumatic testing might be for a young kid. I also don’t really know a ton about POTS, like when symptoms might start appearing. But I really don’t think being concerned for your child’s well being is an overreaction. Sending well wishes to you & her. shannon Quote Link to comment Share on other sites More sharing options...
DizzyGirls Posted May 2, 2018 Report Share Posted May 2, 2018 I think you are being observant, not overreacting. It sounds very much like POTS. Sometimes injuries or a trauma can really zing it into action. I would take her to your autonomic specialist as soon as humanly possible. The wait for those appointments is often long. It's always best to treat any medical issue sooner rather than later. So much harder to calm things down once they've reached "severe" status. Quote Link to comment Share on other sites More sharing options...
Guest KiminOrlando Posted May 2, 2018 Report Share Posted May 2, 2018 Mine started at that age. If your doctor will see pediatric patients, I would take her. Maybe there is a med that can make her more functional and keep her up on her feet. We all know the longer she can stay up and functional, the better chance she has to fight this. Dizzy gives good advice. ☺️ I hope they find a simpler answer though. Quote Link to comment Share on other sites More sharing options...
TCP Posted May 3, 2018 Report Share Posted May 3, 2018 I certainly don't think you are overreacting as there are signs that something is happening. I would arrange a specialist check-up as the sooner she is checked out the better. Don't leave it. Good luck! Quote Link to comment Share on other sites More sharing options...
Pistol Posted May 3, 2018 Author Report Share Posted May 3, 2018 Thank you all so much for your replies - it reassures me that she will have to face the possibility that she may have POTS. As all mothers know: we want so much to save our children from pain and worry - but sometimes we can't. I appreciate all of your advice ! Quote Link to comment Share on other sites More sharing options...
DizzyGirls Posted May 4, 2018 Report Share Posted May 4, 2018 Aww, thanks Kim! Pistol - I know that feeling of trying to save our kids from pain and worry. I've watched my daughters go through things that no one should ever have to go through. I've been compared to a mama grizzly bear, a pit bull, and have told by a doctor that I am "so frustrating"! But on this day, I had to smile. My oldest was having surgery to fix her collapsed neck (fused C3-T4) on her sister's birthday, and her sister was there waiting for 8 hours. My youngest had also developed dopa responsive dystonia (didn't know what it was then) a few months before this and had to take a rollator walker so that she could be there. So, my youngest decided that while she was waiting for her sister to come out of surgery, she would be an advocate for all things "invisible". She had "Dysautonomia Awareness" signs, and Ehlers Danlos signs all over her walker. Big enough for people to read. So, her motto is "go bold or go home!" People tend to stare at a teenager with a walker, and that's what she was counting on. There are a lot of things that we can't control, but we can help them to use these hard things in their lives to make them stronger and to encourage others...to pay it forward. So, hang in there, we are all here to help you get through this!!! Quote Link to comment Share on other sites More sharing options...
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