halffull Posted August 9, 2017 Report Share Posted August 9, 2017 Hi everyone, I'm still a newbie here, only posted once, but I feel like I get a lot from reading other's posts. I've had POTs since 2011 and have had ups and downs. Right now I'm in a bit of a downturn and I'm feeling kind of hopeless. I'm having a lot of GI issues and I feel like my doctors ran the obvious POTS related tests (SIBO breath test, Food emptying/gastroparisis test) both came back normal. They don't seem to have any more ideas. My stomach issues are causing huge flair ups in my POTS symptoms and my anxiety. I've tried low FODMAP diet (though admittedly not long enough possibly) with no improvement. I haven't done gluten free, but my specialist thinks it won't help me at all. I eat a mostly healthy vegetarian diet normally. I've been diagnosed with IBS several times, but feel like there's got to be something else going on here. I'm constantly bloated, nauseous, having intestinal pain or gurgling/activity, inconsistent stools, dizzy, acid reflux, etc. Does anyone else have similar issues and been cleared for SIBO/gastropariasis? I feel like it can't just be IBS. Quote Link to comment Share on other sites More sharing options...
Guest KiminOrlando Posted August 9, 2017 Report Share Posted August 9, 2017 I do, and it was gastroparesis. I'm at a loss. Did you by any chance have an empty digestive system when you went for the gastric emptying study? Did they check you for Sprue? I hope someone figures it out soon. I know how miserable that can be. Kim Quote Link to comment Share on other sites More sharing options...
halffull Posted August 9, 2017 Author Report Share Posted August 9, 2017 (edited) They had me fast for 12 hours before the test and then cooked me some radioactive eggs and toast (weirdest test I've ever had lol). I'm not sure what you mean by Sprue but if you mean Celiac I was tested like 10 years ago and was negative. Another weird thing is I seem to be gaining a bit of weight steadily over the past couple months and don't feel like I've been eating much more/unhealthily. And thanks! I just don't really know what to do since my medical team seems uninterested in figuring it out. I feels like if I could just eat the right things it would all go away, but it doesn't seem consistent as to what upsets my stomach or doesn't. Edited August 9, 2017 by halffull added weight gain detail Quote Link to comment Share on other sites More sharing options...
JaneEyre9 Posted August 10, 2017 Report Share Posted August 10, 2017 In my experience, my IBS and my diet were directly related to my POTS symptoms. A doctor suggested I try eliminating sugars/all grains/high-carbs, and it was amazing how much my dizziness and stomach improved. The diagnosis for me was severe intestinal permeability. I would suggest talking with an integrative health MD or functional medicine doctor about this in your case. Once the junctions between your intestinal cells loosen and allow in undigested proteins and particles, your immune system reacts. Gluten and dairy proteins are major culprits for this immune reaction. I tested negative for celiac disease as well but strictly removing gluten helped me. I also found supplements to help heal the intestines like grass-fed gelatin, l-glutamine, and bone broth. Probiotics are important as well, but it took me a long time to find probiotics I could tolerate. The balance of bacteria in the gut plays a major role in anxiety, autoimmune disease, and of course digestion and poor absorption of nutrients. It is a long road, but diet has been a key factor in my healing. I no longer have POTS symptoms, and I used to be homebound years ago. I can empathize with your IBS symptoms. It is miserable. Quote Link to comment Share on other sites More sharing options...
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