New member--looking for dr in St. Louis

[Ellejb]

Hello,

I just learned of these conditions and was researching it when I found this forum today.  I was relieved to finally put a name to the many debilitating symptoms I have.

 I have been suffering for decades with severe fatigue, lightheadedness, near fainting, blacking out when bending over or standing up, vertigo, low blood pressure with high pulse upon standing, exercise intolerance, temperature intolerance, on and on and on! I have been to more doctors than I can count. I was diagnosed in 1997 with Chronic Fatigue Syndrome. I was also diagnosed later with Chronic-late stage Lyme disease that was never treated as doctors told me for years Lyme didn't exist.  The symptoms of POTS are worsening as I get older and less healthy.  I am trying to find a doctor in St. Louis as there is no one in my area who can help me.

I have seen on some other posts that others go to St. Louis but they don't mention the names of their doctors and the doctors are not listed on the Physician resource area. 

I am desperately needing to find help as I can barely function at this time.  I don't know if there are treatments for this condition but I would be willing to go to yet another doctor to try to find some help. If anyone knows of one or has any suggestions for a newbie, I would appreciate it! I'm so grateful I found this site! Thank you for letting me post.

 

[Clb75]

Hello, welcome to the site. Hopefully you'll find some information here that can be helpful to you. I'm sorry you weren't able to find any specific names of doctors. Generally cardiologists that specialize in electrophysiology or neurologists that treat autonomic disorders would be the best place to start. Do you have a primary care doctor? Maybe they can help refer you to a specialist as well. 

[Momof3boys]

Dr Lawrence Kinsella.  He is a neurologist who specializes in autonomic dysfunction.  I drove from Kansas City to St Louis last spring to see him & wish I would have years earlier.  He is awesome.