p8d Posted June 3, 2017 Report Share Posted June 3, 2017 Hi everyone. I've been less active but lurking for several months. I have hyper POTS, high norepinephrine on standing tested two years ago. I used clonidine until a month ago when new cardiologist switched me to Bystolic. I have far fewer bp drops and less fatigue on Bystolic but bp is staying elevated to 150s/upper 80s by mid-day and continuing through the day. When I drink 8-16 oz of fluids my bp jumps 20 or so points systolic in minutes. That leaves me 170s/88-91 for awhile. I'm told to try adjusting doses and document vitals. I tried 1.5 tablets of Bystolic with not much change in bp. I cut back fludricortisone to 1/4 tablet daily from 1/2. I don't like my bp going this high. I called the Dr Wednesday and am waiting for a call back. Any ideas what is causing this and what I can do/ask the Dr for? Is this response to fluids normal? Help!! Thanks in advance. Quote Link to comment Share on other sites More sharing options...
cmreber Posted June 3, 2017 Report Share Posted June 3, 2017 I also have Hyper POTS, but I haven't experienced the fluctuations with fluids. I used to get huge random spikes in my BP before I was on meds, but I am on a beta blocker and SSRI now, and my BP actually stays pretty low/steady, typically around 115/70ish, unless I'm having a particularly bad flare. I wish I could help, but I'm not really sure what might cause the jump for you. Hopefully someone on here has experience with the same meds! Quote Link to comment Share on other sites More sharing options...
BuffRockChick Posted June 4, 2017 Report Share Posted June 4, 2017 Drinking a bolus of 16 ounces cold water raises blood pressure from a pressor response. I'm pretty sure it's normal! I think you can avoid it by drinking smaller amounts and/or warmer temperatures. I'm curious what your blood pressure does if you drink 16 ounces of a warm drink? Are you willing to try it to satisfy my curiosity? Please update us when you hear back from your doctor! Quote Link to comment Share on other sites More sharing options...
p8d Posted June 4, 2017 Author Report Share Posted June 4, 2017 Buff, it happens with warm fluids too. . I just don't know how to treat it at all. Thanks. Quote Link to comment Share on other sites More sharing options...
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