Nemesis Posted January 23, 2017 Report Share Posted January 23, 2017 Is octreotide good to cure pots and it is has side effects? My doctor refused to perciped it to me But I read it cured some girl with pots Thanks Quote Link to comment Share on other sites More sharing options...
corina Posted January 24, 2017 Report Share Posted January 24, 2017 I'm on octreotide and though I'm not cured my quality of life is much better! It took my doc about 6 months to agree on prescribing it and I had to up the dose a few times but all in all I'm glad my doc agreed on me using it. I need an SSRI with it to have the best quality of life. I convinced my doctor by bringing him research on the use of octreotide in POTS. May be you need to dig into this, I could help you by e-mailing you the articles I handed to my doctor. However, this med is not for the faint hearted! I got quite sick when I started it (liver problems) which resolved by itself fortunately and recently had to have my gallbladder out which turned out to be chronically inflamed and overloaded with gallstones. Octreotide is known to cause gallstones so I knew at some point the gallbladder had to be taken out. Octreotide can also cause inflammation of both liver and pancreas which can be quite serious. Quote Link to comment Share on other sites More sharing options...
Nemesis Posted January 29, 2017 Author Report Share Posted January 29, 2017 On 01/24/2017 at 8:18 PM, corina said: I'm on octreotide and though I'm not cured my quality of life is much better! It took my doc about 6 months to agree on prescribing it and I had to up the dose a few times but all in all I'm glad my doc agreed on me using it. I need an SSRI with it to have the best quality of life. I convinced my doctor by bringing him research on the use of octreotide in POTS. May be you need to dig into this, I could help you by e-mailing you the articles I handed to my doctor. However, this med is not for the faint hearted! I got quite sick when I started it (liver problems) which resolved by itself fortunately and recently had to have my gallbladder out which turned out to be chronically inflamed and overloaded with gallstones. Octreotide is known to cause gallstones so I knew at some point the gallbladder had to be taken out. Octreotide can also cause inflammation of both liver and pancreas which can be quite serious. Thanks Quote Link to comment Share on other sites More sharing options...
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