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Nemesis

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Everything posted by Nemesis

  1. It's a common side effect yet I don't have it for now
  2. Does if I have dysautonomia, and my smell weakened, indicates that there is future vision change I have blurry vision, sensory hearing loss Thanks
  3. Is octreotide good to cure pots and it is has side effects? My doctor refused to perciped it to me But I read it cured some girl with pots Thanks
  4. No, I didn't do that test I even don't think it exists in my region
  5. I have inherited dysautonomia, my mother and sister and my cousin have dysautonomia My doctor wrote that I have generalised dysautonomia Other doctor said because my dysautonomia is inherited and I lose feeling with pain and conscious temporarily after exposure to sun or heat I have familial dysautonomia Thanks
  6. I drink parsley tea to help in constipation work like magic bowl in water parsley and drink it a cup help me alot
  7. When I have low blood sugar I can raise it only with carbohydrates like rice, bread,..... etc but not not direct sweet or sugar don't know why
  8. Yes all refined sugar cause me low sugar blood and it i eat refined suger while my blood sugar is low i have a terrible hypotension I use one teaspoon of honey it's ok only if I'm not at hypotension
  9. Wish you all well being, healthy life Best wishes
  10. Yesterday I took Phenylephrine bill and cause me nose bleeding lasted for 12 hours
  11. Strange thing that coffee if low or free sugar boost my hypotension and energize me but if I put sugar in coffee or tea i have terrible hypotension and terrible potsy day
  12. I am premature infant born after 7 months I have Hyperadrenergic or pots
  13. I will try it, yes ginger tea is great, personally I love earl grey tea, and green tea but for whatever reason green tee lowering my bp so i replaced it with ginger tea
  14. Thanks very much I was so confused glad I found this amazing site
  15. Sorry to hear that, I am not familiar with your experience but I hope you get better soon I had Steroid diabetes for a year but never faced what you said Regards
  16. Vanillylmandelic Acid, urine test VMA test may be ordered along with one or more metanephrine or catecholamine tests when a doctor suspects that a person has a pheochromocytoma. They may be ordered when a person has persistent or recurring hypertension that is not responding to conventional therapies, to monitor the effectiveness of treatment for a pheochromocytoma, and periodically to monitor for recurrence
  17. But is it normal to VMA to be normal with Hyperadrenergic pots? Because my VMA was normal
  18. For whatever reason Bisoprolol increased hot flashes, cold shivers, caused me hypothermia
  19. Thanks I will see about cooling vest I will ask my doctor about it Well I took neuropathy medicines weren't effective maybe that relate to my migraine Thanks again
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