katcanny Posted November 12, 2016 Report Share Posted November 12, 2016 Hi all, I have been recently diagnosed with POTS awaiting further tests and a specialist appointment. I am curious about what others have been told about having a nap during the day if you are exhausted? I have been told not too and to try and work through the exhaustion but to sit or lay and relax. My days run the same lately I wake feeling normal until I sit up, stay in bed sitting and drink a bottle of water and put on my compression stockings then time to be upright! I work in the mornings at the moment for 2 hours but by the time I get home the afternoons are horrible, brain fog chest pain and so tired I can hardly keep my eyes open. Then at about 6pm I get an adrenaline surge and run around the house cleaning and cook dinner while I have the energy to be upright to look after my 10 year old. I don't know if I should nap in the afternoon when I am feeling so out of it or it will make my symptoms worst? Quote Link to comment Share on other sites More sharing options...
Katybug Posted November 12, 2016 Report Share Posted November 12, 2016 I am diagnosed, through a daytime sleep study, with significant daytime hypersomnia. So, in my case, I sometimes do not have a choice but to take a nap. If I don't I become presyncopal and have had moments when my body has started to collapse (without passing out.) Not all POTS patients have sleep issues/disorders, but it's not uncommon in our population. I think many of us have benefited from having day and nighttime sleep studies. Quote Link to comment Share on other sites More sharing options...
katcanny Posted November 12, 2016 Author Report Share Posted November 12, 2016 Thank you Katybug, something I will definitely bring up to my doctor regarding doing a sleep study. My legs get really weak like I'm just going to take a step and they won't work properly so I lay down for about 30 minutes just to rest and have to keep myself awake so I don't fall asleep! Thank goodness I found this forum now I have something to read while I'm waiting for my symptoms to regulate a little. Quote Link to comment Share on other sites More sharing options...
Stephanieann Posted November 12, 2016 Report Share Posted November 12, 2016 I have a lot of sleep issues and naps make me more symptomatic upon wakening so I try to avoid them. Everyone is different, though. I noticed that sometimes you have to experiment and see what works for you. Quote Link to comment Share on other sites More sharing options...
katcanny Posted November 12, 2016 Author Report Share Posted November 12, 2016 Hi Stephanieann, thats what I am worried will happen to me, I worry about decondition aswell! I was in hospital previous to my diagnosis and was told I had a severe migraine even though I had never suffered from them before they didn't do my obs and sent me home on panadeine forte and bed rest and then three weeks later I was that unwell I ended up in hospital for a week until I got my diagnosis. Having to use a walking frame but at least now I'm able to use a walking stick so trying to find the positives for sure! ? I think that the bed rest and pain meds may have made my symptoms a whole heap worst Quote Link to comment Share on other sites More sharing options...
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