Kris4444 Posted September 26, 2016 Report Share Posted September 26, 2016 I've been struggling lately. Hospitalized twice in the last month. Lots of left sided pain which gets worse after eating. I'm only eating soft foods but even that is aggravating my condition. I've lost 22 pounds. I'm on Domperidone for the second time. Last time I had to stop due to prolonged QTs. This weekend my husband and I found ourselves with no kids. We ate out Friday and Saturday. Sushi the first day with some rice, I kept the quantity small. Saturday I had baked tilapia and a cup of soup, cup of mashed potatoes and a small side of whipped sweet potatoes. All soft and maybe a 1/4 of what I used to be able to eat. I had a lot of pain but what really shocked me this morning was when I weighed myself. I gained 11 pounds over the weekend!! I know it's from the sodium, my face is puffy, hands too. Worse yet, my blood pressure this morning was 169/105 yet my heart rate was in the 50's. I have a host of other medical issues, dysautonomia being one. I'm kind of freaking out over the swelling, weight gain and bp. Does anyone else experience this? Thanks. Quote Link to comment Share on other sites More sharing options...
Guest ANCY Posted September 27, 2016 Report Share Posted September 27, 2016 Well I don't have all the answers but I go through phases like that where I put on weight very rapidly. Some is water weight and my GI Dr said that my metabolism is probably the culprit for the rest, due to the Gastroparesis of course. I do get wonky bp and hr during these times but I tend to get high and then drop low. I also cannot eat much and keep it down, hence my feeding tube. Your meal sounds lime a feast to me lol! ?I would just say try as hard as you can to find ways to get the nutrition in if you can. Quote Link to comment Share on other sites More sharing options...
Kris4444 Posted September 27, 2016 Author Report Share Posted September 27, 2016 Ancy, that was a lot of food for me and I was miserable all weekend. It's rare for all the kids to be gone! My bp does the same thing, stays high then goes low. My heart rate can drop down into the 40's even with the high bp. They noticed this in the hospital but didn't do anything about it. Quote Link to comment Share on other sites More sharing options...
Guest ANCY Posted September 27, 2016 Report Share Posted September 27, 2016 Sometimes it's feast or famine with GP, I hope you will be able to find enjoyment in food again at some point. My heart rate used to do that some of the time, but with the pacemaker i have now I no longer go below 60. A relief because a hr in the 40s, as you know, feels terrible. Hope you find something helpful soon, I know how stressful it is with the constant worry of wether yuri getting in enough calories. GP kind of turns the joy of eating sour... Quote Link to comment Share on other sites More sharing options...
Kris4444 Posted September 27, 2016 Author Report Share Posted September 27, 2016 At my GP now. BP at home was 169/108. Maybe my monitor is off? Yes, eating is not what it used to be. My GI doctor said that domperidone shouldn't be causing this high bp... Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted September 27, 2016 Report Share Posted September 27, 2016 I do find the home bp monitors, or even the automated ones at dr's office, to be sometimes less accurate than the manual ones at dr's office. Hope you feel better soon. Quote Link to comment Share on other sites More sharing options...
Kris4444 Posted September 27, 2016 Author Report Share Posted September 27, 2016 Thank you! Quote Link to comment Share on other sites More sharing options...
Guest ANCY Posted September 27, 2016 Report Share Posted September 27, 2016 So sorry, hope they can help! Will be praying for you! Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted September 28, 2016 Report Share Posted September 28, 2016 Hi, Kris! Re: your home BP monitor, I bring mine every few months to the doctor's office so they can check if the reading's match up. Quote Link to comment Share on other sites More sharing options...
Kris4444 Posted September 28, 2016 Author Report Share Posted September 28, 2016 That's a good idea. We changed the batteries last night. After driving home an hour from my mom's I was really feeling terrible. BP was 175/111! This morning it's 118/87. Crazy. Quote Link to comment Share on other sites More sharing options...
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