Chrissy Posted June 20, 2005 Report Share Posted June 20, 2005 Hi. I am hoping someone can give some possible answers to a horrible odor I have had now for several weeks. I have dysautonomia, but have not been pinpointed as to a specific syndrome yet. My symptoms are very progressive. I have alot of pain below my belly button and have noticed a very offensive odor. It is not from urine. It smells like something died inside of me. We plan to see a urologist but like we all know, most regular doctors don't understand this disorder. Do you think this is related to dysautonomia? I will be traveling from LA to VA soon to see the specialist there. I have heard that he is one of the best. My cardiologist has prescribed florinef to help regulate my blood pressure but that is all I am taking right now except benedril when my itching is so bad that I can't stand it anymore. I do try to just cope with the symptoms as best I can because I don't want to find myself on too many medications. It seems every time you go to a doctor, they want to put you on something else. That is what I will be glad to see the specialist. My neurologist is very understanding but admits that he does need the guidance of the specialist b/c the autonomic nervous system is too involved and there are thousands of tests that could be run. Please let me know if anyone is also having this odor problem. I do see that several are seeing a urologist and was thinking maybe this is why. Also my monthly cycles have gotten much shorter than before I got sick. Thank you for any info you can provide. Chrissy Quote Link to comment Share on other sites More sharing options...
KathyP Posted June 20, 2005 Report Share Posted June 20, 2005 Hi Chrissy;You say you have pain below the bellybutton, a bad odor, irregular menstrual cycles and it is not from urine? To me it sounds like a gynocological problem, possibly an infection. It would be a good idea to see your regular gynocologist, who does your pap tests, to do an exam. Take care!KathyP Quote Link to comment Share on other sites More sharing options...
Sunfish Posted June 20, 2005 Report Share Posted June 20, 2005 Hi Chrissy - Like Kathy, I was going to encourage you to get a GYN consult. Yeast infections can have a severe odor, as can many other GYN problems. In terms of Uro problems & why most on the board see Urologist, I obviously can't speak for all but to the best of my recollection some have IC, which can cause lots of pain amongst other things, and some have more directly nerve-based issues of incontenance or retention, some with the "neurogenic bladder" diagnosis. Often as an offshoot of these things, some have frequent bladder infections.Personally I have a neurogenic bladder...often don't feel as if I have to go at all & if I do it's long past when "normal" (my bladder is already too full). I also cannot go on my own anymore at times & never empty fully so have to catheterize myself several times a day. In terms of pain, I get belly pain when I don't catheterize as I should from my bladder overfilling. And some burning when I've had UTIs.I hope you're able to get some answers for yourself soon!Take care & let us know how things go,:-)melissa Quote Link to comment Share on other sites More sharing options...
Recommended Posts
Join the conversation
You can post now and register later. If you have an account, sign in now to post with your account.