Loulou Posted April 12, 2016 Report Share Posted April 12, 2016 Hi, More questions for you all, I have had hair loss with my mast cell, once treatment begins helping does your hair come back and what about mast cell causes your hair to fall out? Also, when having skin biopsies will mast cell show up if the lesion is an old lesion? I hope you have experience with this and can help me. Once you all were on the right meds for your condition did you begin to feel better and see improvement in your skin? Does the proper medications make a difference in your ability to function daily? Thanks for your help. I guess I am going to have to travel out of town for treatment. I can not find a doctor locally who know how. Quote Link to comment Share on other sites More sharing options...
Katybug Posted April 13, 2016 Report Share Posted April 13, 2016 I think what you are referring to would be cutaneous mastocytosis. That has a different origin than MCAS. Mastocytosis is an overproduction of mast cells and MCAS is a dysfunction of a normal amount of mast cells. It is important to be diagnosed properly between the two and they are treated differently in some respects and the implications of the disease processes are different. The Mastocytosis Society has a pretty good website if you haven't found it already, so you can find more information and resources. Quote Link to comment Share on other sites More sharing options...
Katybug Posted April 13, 2016 Report Share Posted April 13, 2016 Also, immunologist or hematologist might help with MCAS, depending on their individual interests. However, mastocytosis generally requires a hematologist. Quote Link to comment Share on other sites More sharing options...
Loulou Posted April 13, 2016 Author Report Share Posted April 13, 2016 Thank you Katybug. I will check out this site. Quote Link to comment Share on other sites More sharing options...
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