Guest Posted March 5, 2016 Report Share Posted March 5, 2016 Hello Everyone,Every now and then I have a "good" day where I don't feel normal, but I also don't feel as bad as usual. My questions are...1) if you have POTS and you're having a "good" day, does your heart rate still go up at least 30 bpm after standing? 2) If it does, why do you think your symptoms are better that day (because rapid heart causes a lot of them, right?). 3) If your standing heart rate is more normal on "good" days, do you have any idea why that is? 4) Can you have good heart rate days if you have POTS?Thanks!!Draven Quote Link to comment Share on other sites More sharing options...
dancer65 Posted March 5, 2016 Report Share Posted March 5, 2016 On a good day I don't tend to monitor my heart as much but I would say I do have the occasional day when it doesn't raise 30 . However I know I can have a day when I feel lousy and both my Bp and Hr are not as bad as would expect for how I feel . I can not figure out all the time what triggers are . After my TTT my consultant said symptons and the high Hr don't always happen at the same time but it is the autonomic system sending the wrong information. I was told each day can vary in POTSI will be interested what the more experienced members have to say too Quote Link to comment Share on other sites More sharing options...
Lily Posted March 7, 2016 Report Share Posted March 7, 2016 For me, blood pooling is more of a problem than high heart rate. Clonidine keeps the HR and hypernadrenergic part under a reasonable level of control, but this does not fix the blood pooling. Therefore I still have symptoms and these vary according to weather conditions, activity type, and whether or not I remember to take enough salt/water and wear compression hose. Quote Link to comment Share on other sites More sharing options...
Guest Posted March 7, 2016 Report Share Posted March 7, 2016 Thanks Dancer65 and Lily! You know, I was thinking too that some days I feel worse than my heart rate shows. I wonder if it's linked to the pooling blood you mentioned Lily? Interesting! Quote Link to comment Share on other sites More sharing options...
Always hoping Posted March 8, 2016 Report Share Posted March 8, 2016 I can't link my type of days directly with my HR either. Some days the HR is "bad" but symptoms are "good" and the reverse. For me, I think there are several factors and not just my HR. Many of which seem to bother Lily also. Be well. Quote Link to comment Share on other sites More sharing options...
Lily Posted March 9, 2016 Report Share Posted March 9, 2016 The blood pooling is pretty obvious, but I didn't know it is abnormal until the doctor told me. I thought my feet got red-purple because I was standing on them, and that the veins filled and bulged out for the same reason. Quote Link to comment Share on other sites More sharing options...
Guest Posted March 14, 2016 Report Share Posted March 14, 2016 Thanks Always Hoping and Lily! Its funny...I recently discovered that I have pooling blood. Like you Lily, I thought purplish/veiny legs/feet when standing was normal...that's the way mine have been for years. Anyways, I was in the shower, and when I put one leg down after shaving I realized it was waaaay lighter in colour than the other one. Now that I know, I look at them and can't believe I thought it was normal. Quote Link to comment Share on other sites More sharing options...
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