Help With Symptoms, Need Support

[vonant]

This is not a propper introduction but I need some help. I have been dealing with extreme sweating, distented abdoman and thirst for over three years ever since comming off SSRI's. Within the last few months (possibly 4 months) I have gone worse and worse in terms of new symptoms. I'm just so scared about all of this and the fact that it continues to get worse. I am practically bedridden at my parents.

I am turning 27 next month. I am male and live in Copenhagen, Denmark.

Let me start off by saying I have not been officially diagnosed with anything. My doctor is very confused about my symptoms, as am I.

But I think I'm experiencing dysautonomia.

The symptoms evolved extremely gradually. I noticed I'd started doing stretches at work. My legs were sore from standing. Didn't think much of it. I thought my bike had a flat tire because it was getting heavier etc. Then I started coming down with the flu. And I noticed a pattern. It was always in the days following a jog or a physical activity. Then I noticed it wasn't the flu at all. I had no fever even though it felt just like it. Then I just became weaker and weaker. I also noticed I'd even begun to sit down when I peed. Retrospectively probably simply because I wouldn't have to stand. breathing became heavier and slower. I also had occasional episodes of feeling extremely cold. Even hot showers couldnt warm me. I tried taking hot baths to ease my sore legs but when I got out of the bath everything started spinning and I felt like I was about to puke and feint and I stumbled out and fell onto my bed heart racing. Episodes of nausea became more and more frequent. Now I have daily nausea and vertigo and extreme weakness together with the flu like/burning sensations. I can barely walk more than a few meters.

I don't know what I expect to hear from you guys. I just need some comfort, some reasurance. I need to hear others have been in my situation and it can get better. And hopefully fast. just a little better. Please tell me a gradual onset like mine is normal and it peeks and then goes back down a bit! that it gets better.

I have changed my life style around comepletely within the last month or so together with a skilled naturepath. I am eating super healthy and taking supplements and sleeping. I have worked parttime at a bar with smoke and drinking on the weekends for a few years. Plus messed up sleeping pattern. I hope changing all these bad things will improve my symptoms soon because it feels like im still getting weaker. Will I end up a paralyzed vegetable?

Symptoms:

- severe muscle weakness

- vertigo (rocking like on a boat)

- severe nausea comming and going randomly

- double vision

- sweating

- distented abdonman

- extreme thirst

- extreme dry mouth (also nose and possibly eyes)

- icey cold feet

- frequent urination

- weird sounds from intestines and even throat

- flu like, feverish sensations all over body

- fibromyalgia

- hot flashes

- feeling cold to the bone

- burning sensations

- muscle/nerve spasms all over body

- tinnitus in left ear, ringing in both ears

I don't know what to do if I get worse.

[statesof]

Well you certainly have a number of symptoms there some fit for dysautonomia but I think your doctors need to do more testing to rule things out. Have you gone to an autonomic specialist or had a tilt table test done? They at least may be able to help you figure out if you in fact have POTS, and direct you to medications that may be of some help. When I first started having symptoms they gradually got worse and snowballed for the first three to five months, my symptoms are quite different from yours but I also have migraine and deprrsonalization disorder in the mix.

Just try and schedule appointments with doctors and bring the list of symptoms and your back story I think you summarized it rather well. In the mean time you could try salt and water loading as well as compression stockings to see if that helps, as well as some stationary bike exercise if you could manage it; but don't be afraid to take things slow.

Since you mentioned SSRI's have you read about SSRI discontinuation syndrome? It can cause a number of long lasting neurological symptoms, I know it is certainly a trigger for deprrsonalization disorder, though I'm not sure if it relates to dysautonomia in any way.

[masumeh]

How long has this been going on?