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  1. Hi I'm new to all of this and haven't even had a TTT yet. What is the criteria for hyperadrenergenic POTS? How is it diagnosed? I've had a rash around the back of my neck for years and since my fatigue symptoms started I get adrenaline rushes when I'm just about to fall asleep and even wake up in the middle of the night from adrenaline rushes? Does that mean I have hyper POTS? I hope not
  2. Hello. I am new and likely have severe dysautonomia. I have all the symptoms. I want to ask about weakness in the limbs. I have constant weakness in my arms and leg muscles. Biceps and thighs mostly. I can feel it throughout the day and it gets worse if I over use them. I thought it was normal in dysautonomia but I havn't seen it mentioned that much. I always see this word "fatigue" and I am confused as to what it exactly means. I'm not tired, I don't feel "run over by a bus". I just have severe weakness and my muscles become sore very easily. Anyone else have this?
  3. This is not a propper introduction but I need some help. I have been dealing with extreme sweating, distented abdoman and thirst for over three years ever since comming off SSRI's. Within the last few months (possibly 4 months) I have gone worse and worse in terms of new symptoms. I'm just so scared about all of this and the fact that it continues to get worse. I am practically bedridden at my parents. I am turning 27 next month. I am male and live in Copenhagen, Denmark. Let me start off by saying I have not been officially diagnosed with anything. My doctor is very confused about my symptoms, as am I. But I think I'm experiencing dysautonomia. The symptoms evolved extremely gradually. I noticed I'd started doing stretches at work. My legs were sore from standing. Didn't think much of it. I thought my bike had a flat tire because it was getting heavier etc. Then I started coming down with the flu. And I noticed a pattern. It was always in the days following a jog or a physical activity. Then I noticed it wasn't the flu at all. I had no fever even though it felt just like it. Then I just became weaker and weaker. I also noticed I'd even begun to sit down when I peed. Retrospectively probably simply because I wouldn't have to stand. breathing became heavier and slower. I also had occasional episodes of feeling extremely cold. Even hot showers couldnt warm me. I tried taking hot baths to ease my sore legs but when I got out of the bath everything started spinning and I felt like I was about to puke and feint and I stumbled out and fell onto my bed heart racing. Episodes of nausea became more and more frequent. Now I have daily nausea and vertigo and extreme weakness together with the flu like/burning sensations. I can barely walk more than a few meters. I don't know what I expect to hear from you guys. I just need some comfort, some reasurance. I need to hear others have been in my situation and it can get better. And hopefully fast. just a little better. Please tell me a gradual onset like mine is normal and it peeks and then goes back down a bit! that it gets better. I have changed my life style around comepletely within the last month or so together with a skilled naturepath. I am eating super healthy and taking supplements and sleeping. I have worked parttime at a bar with smoke and drinking on the weekends for a few years. Plus messed up sleeping pattern. I hope changing all these bad things will improve my symptoms soon because it feels like im still getting weaker. Will I end up a paralyzed vegetable? Symptoms: - severe muscle weakness - vertigo (rocking like on a boat) - severe nausea comming and going randomly - double vision - sweating - distented abdonman - extreme thirst - extreme dry mouth (also nose and possibly eyes) - icey cold feet - frequent urination - weird sounds from intestines and even throat - flu like, feverish sensations all over body - fibromyalgia - hot flashes - feeling cold to the bone - burning sensations - muscle/nerve spasms all over body - tinnitus in left ear, ringing in both ears I don't know what to do if I get worse.
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