Pots Alopecia And Florinef

[dancer65]

Like many of you here I am trying to put the puzzle together concerning my health issues, I believe you have to be your own advocate when it comes to treatment and finding the cause. I am convinced my immune problems were triggered by antibiotics and adrenal problems but also hereditary I just wondered if anyone else here has alopecia ?

I developed alopecia at the age of 12 ( now 50) which continued over a period of four months to loose all my hair everywhere, AU. It has been a rollercoaster journey but I am ok with the deal these days, at least I don't have to shave my legs

Since starting Florinef my eyelashes are growing back as are some of my eyebrows ( but not where I want them!). Obviously the Florinef is helping the immune system in some way I just wondered if any one else here has noticed an improvement in alopecia whilst on steroids or if they understand why ?

Thank you in advance

[SarahA33]

Hi Dancer65,

I'm glad that you found our forum. Reading others stories and hearing about the timeline of their events was a big help in putting some of my own pieces together.

I'm not very familiar with Florinef, wasn't on it very long, so I unfortunately cant comment on why its been so helpful for you, but hopefully some of the other members will come on by offer their insight! I just wanted say hello and welcome you to the forum!

Sarah

[Katybug]

Hi dancer,

Here is a link from a drug website that lists hirsutism (growth of bodily and facial hair) as a potential side effect of florinef. It's in the side effects section under dermatological effects.

http://www.rxlist.com/script/main/mobileart-rx.asp?drug=florinef&monotype=rx-ad&monopage=4

Hope this helps.

[dancer65]

Sarah thank you for your welcome! I have only been her a short time but the info I have found has been invaluable.

Katy once again thank you