BeforeTheMorning Posted December 27, 2014 Report Share Posted December 27, 2014 I saw my POTS doctor once, a year ago, but don't have any other appointments to see him as he has like a 14 month waiting list. I do get to speak to one of the nurses every six months though. I got started on a medication for my POTS early this year, and although it does help a little, I'm still not able to do 'normal' things without feeling really bad. I know some people have tried more than one medication and I wondered how you got your doctor to try new things, I get to speak to the nurse in a few weeks and would love any tips.I'm still young and I so much want to be able to do things and get a job so I can support myself. But at the moment I'm not well enough. Quote Link to comment Share on other sites More sharing options...
looneymom Posted December 27, 2014 Report Share Posted December 27, 2014 I do lots of research. When I find something that I think might be useful, I dig even harder to find research that supports my cause. Our cardiologist likes to see research from well know medical researchers and hospitals. Vanderbilt research ranks high with Tyler's cardiologist and so does Dr. Grubbs research. Quote Link to comment Share on other sites More sharing options...
BeforeTheMorning Posted December 29, 2014 Author Report Share Posted December 29, 2014 Thanks looneymom, I'll have to do some more research, and see what comes up. Quote Link to comment Share on other sites More sharing options...
srb Posted December 29, 2014 Report Share Posted December 29, 2014 I agree that research also helped with my cardiologist. I also gave him concrete examples of things that helped and didn't, which led him to let me try Midodrine. Quote Link to comment Share on other sites More sharing options...
corina Posted December 29, 2014 Report Share Posted December 29, 2014 I actually printed the What Helps list from DINET, took it to my doc and asked him if he was willing to work with it. He told hme he had a list as well and we started working from their. My doc is very willing to work with me, we respect eachother as well as eachother's point of view. We are open and honest which makes things a lot easier! Quote Link to comment Share on other sites More sharing options...
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