Praxxtor Posted November 10, 2014 Report Share Posted November 10, 2014 Can it be possible to be both? When I have things to do (the world outside) I can have bowel movements minutes after I eat anything, even something as simple as a rice cake. I can pass many bowel movements as much as I eat all within minutes of eating. I've recorded 20 bowel movements a day. Yet when I rest at home for a few days, anything I eat seems to just stop causing a massive bulge in my abdomen, that won't budge, that feels awful until the food starts to move, which usually takes 4 hours on average. It's like, you're ****** if you do and you're ****** if you don't. My docs always recommending to eat smaller portions and more often, but this does not work in my case. I literally only eat breakfast and dinner, that's it. If I were to eat on a regular basis, I'd be toilet-bound. When I worked, I didn't eat anything for breakfast, and nothing at work (9 hour shifts) until I got back home, simply because my gastro symptoms would halt me.Anyone else like the toilet as much as me? Quote Link to comment Share on other sites More sharing options...
Goschi Posted November 10, 2014 Report Share Posted November 10, 2014 Your story sounds almost literally like mine...That's exactely how my dysautonomia flares always started... Quote Link to comment Share on other sites More sharing options...
Katybug Posted November 10, 2014 Report Share Posted November 10, 2014 Count me in. I usually go so often that if I have a day that I only go 1-3 times, I feel constipated. I also have bowel urgency....one minute I don't have to go, and the next I have to go RIGHT NOW! That's a rather annoying feature of the whole thing. Quote Link to comment Share on other sites More sharing options...
Goschi Posted November 11, 2014 Report Share Posted November 11, 2014 I actually would like to know why this very uncomfortable symptom is connected with dysautonomia - and what we can do to adress it! Occasionally, this is the most debilitating symptom for my every day life, everything else I could handle... :-(( Quote Link to comment Share on other sites More sharing options...
Praxxtor Posted November 11, 2014 Author Report Share Posted November 11, 2014 Nice to know I'm not the only one. Wish it wouldn't be so chronic. As Goschi stated it, for me it is the most debilitating symptom too. I don't think there's much we can do to be fair. I always get the the statement the "digestive system is very complex" and I even had a head nurse at the clinic tell me that there really isn't anything they can do for these symptoms. When you're chronically sick for so long it becomes your normal state. Oh gosh, Katy you're so right, bowel urgency is extremely frustrating. It's sorta funny because all my major issues i.e my gut and eyes are things they can't fix, these being the ones that halt me from leading a normal life. Stay strong you lot! Quote Link to comment Share on other sites More sharing options...
Katybug Posted November 11, 2014 Report Share Posted November 11, 2014 Well, the why is because the gi tract is controlled by the autonomic nervous system. That doesn't make it any easier to fix. I am just finding out that I have severe food allergies. They don't express themselves like a normal food allergy with itching of the mouth /tongue/throat and swelling of the same. But the immunologist thinks that all my gi issues might be how my body expresses the allergies. I'm allergic to everything but 4 of the foods tested. I'm hoping this is a new lead for me. The immunologist actually thinks quite a few of my weird symptoms could be originating from this allergy problem. If your interested in this lin e of thought, see my current thread regarding IgE allergies and mast cells and autoimmune disease. Quote Link to comment Share on other sites More sharing options...
Praxxtor Posted November 11, 2014 Author Report Share Posted November 11, 2014 That's quite interesting. What 4 foods are those? Were you surprised to hear that you had severe food allergies? Like sometimes you might eat a specific food for years and never realize that it could be the cause of many symptoms or were your symptoms upon you the instant you ate? I got tested for gluten intolerance which came out negative and for the sake of experimenting, I still tried the gluten free diet but it made no difference. I've also been on the Paleo diet to no avail. I'll look into that thread of yours Katy! Thanks! Quote Link to comment Share on other sites More sharing options...
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