andybonse Posted September 1, 2014 Report Share Posted September 1, 2014 Hey all,Lately, I've been doing a lot more exercise, my main symptoms are air hunger and shortness of breath, weird light headed feeling and tachycardia(only when hot or after large meal).My air hunger / SOB, was terrible so intense lots of skipped beats etc, since starting exercise 2 months ago and lowering my florinef to 1/2.5 of a pill per day it has significantly improved from what is was, and its amazing, however its still uncomfortable.I have been able to start driving, going up to my friends house and girlfriends! I went to her birthday party at her house round the corner, I was stood up 9 hours feeling fine, sitting down inbetween but not because I needed to!!!So infact I have improved, but no where near a livable life.We went to the pub for an hour and played snooker! Then I started feeling light headed / not here and we went, but the tachycardia has not been an issue, my hr has been like 70-90 stood up.I just wonder what to do next,I have an offer from the doctor to try octreotide,I just need like a little boost and id probably have a moe livable life.I was thinking, over the past years I became inactive, while having pots, I think my body may of made a lot more red blood cells to cope but since inactive they dropped maybe.Just cant bare the shortness of breath I get, especially at rest. Quote Link to comment Share on other sites More sharing options...
misstraci Posted September 3, 2014 Report Share Posted September 3, 2014 Andy, I don't have any suggestions of what next but I wanted to say great job on exercising and getting stronger with some improvements, that's awesome!!! Glad you have been able to do a few things with friends/girlfriend. Quote Link to comment Share on other sites More sharing options...
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