SarahA33 Posted June 22, 2014 Report Share Posted June 22, 2014 Hello everyone!As difficult as the last few months have been for me in regards to the seizures, there really is always a silver lining that seems to come from all of it..I have had to see 3 new neurologist's for my Epilepsy and Migraines, the good news is this: The hospital that my local neurologist's works at is a teaching hospital, so before the neurologist comes in, there always is a fellow that comes in prior and then stays throughout the rest of the appointment. Each neurology fellow that I've seen thus far has had pretty decent knowledge of POTS and dysautonomia. It's so refreshing that these residents coming from a neuro residency are able to diagonose and have treated a few patients locally. They're extremely curious and want to discuss the "hyper" feature and are always so willing to listen to me about how I was diagnosed and all of the other conditions it was mixed up with.Has anyone else noticed this? It gave me a lot of hope! Quote Link to comment Share on other sites More sharing options...
Katybug Posted June 22, 2014 Report Share Posted June 22, 2014 Yes. You summed it up beautifully. :-) One of my best friends is a med student and they were taught a section on pots/dysautonomia and also EDS, both of which I felt were quite extensive. (Of course all her med school friends were jealous because she knew all about it already. Lol.) Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted June 22, 2014 Report Share Posted June 22, 2014 That is positive news! Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted June 22, 2014 Author Report Share Posted June 22, 2014 It's nice to not be the one educating doctor's for a change, however, that doesn't stop me. I'll talk to whatever doctor I can that will listen to me. There's nothing worse than a stubborn who is dismissive Quote Link to comment Share on other sites More sharing options...
writerlymom Posted June 22, 2014 Report Share Posted June 22, 2014 Thanks for sharing - that's great news! Quote Link to comment Share on other sites More sharing options...
looneymom Posted June 23, 2014 Report Share Posted June 23, 2014 This is positive and very encouraging. Our teaching hospitals are the key to this. Quote Link to comment Share on other sites More sharing options...
valiz Posted June 24, 2014 Report Share Posted June 24, 2014 Sarah, I had an ER Dr. ask me "what is POTS and didn't know what NMH was either. I hate going to the ER because of the ignorance with the medical professionals there. I don't think they are interested in learning about it either...it is easier to think symptoms are somatic. Quote Link to comment Share on other sites More sharing options...
imapumpkin Posted June 27, 2014 Report Share Posted June 27, 2014 YES! I had to go to the ER last week (mostly unrelated to POTS issues) and both the nurses and the ER doc I saw knew what POTS was.The nurse was like "I'm an ER nurse, of course I know what POTS is." I told her a few short years ago even the doctors there had no clue. I'm glad the awareness is spreading. Quote Link to comment Share on other sites More sharing options...
looneymom Posted June 28, 2014 Report Share Posted June 28, 2014 Hi Sarah,Like you, Tyler had an amazing hospital experience this last time in the hospital. Our cardiologist brought in his intern team about (6 students)with him. Most of the time it's just our cardiologist that pops in but this time it was different. Children's OU is a teaching hospital. Tyler also had the same IVIG nurse again and she has most of the other peds. POTS patients that come in for treatment. I figure this would eventually start happening at this hospital. This nurse has also been training the other nurses on the floor and educating them about POTS. Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted July 7, 2014 Author Report Share Posted July 7, 2014 Rachel,That's so great! You are correct, teaching hospitals are where we need to focus, and also ER's. Most doctors won't see patients as complicated as some us in their careers, so for them to get to listen and ask questions, its a huge teaching experience for them. A lot more productive then reading a excerpt from a chapter in a medical book. Quote Link to comment Share on other sites More sharing options...
SarahA33 Posted July 7, 2014 Author Report Share Posted July 7, 2014 Pumpkin,Sad. It helps if I have to go in for fluids for my doctors to call the hospital thry have priveleges at and call in a med/ treatment request.Hope you doing better since your last trip to ER. ~Sarah Quote Link to comment Share on other sites More sharing options...
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