alexaniko Posted April 1, 2014 Report Share Posted April 1, 2014 Hello,I have a son who got sick with dysautonomia at age 11. He is almost 16 now. I have read accounts where boys have gotten better around the age of 19, when their growth stops.I would appreciate any information on this.Thank you,Carolyn Quote Link to comment Share on other sites More sharing options...
Christy_D Posted April 1, 2014 Report Share Posted April 1, 2014 My son is doing much better, and I'm not sure he even has POTS anymore. His heart rate does not go up 30 beats any more, no more dizziness or lightheadedness. He was diagnosed at age 14, but it took us a couple of years to get that diagnosis. He is currently 19. He was also diagnosed with MCAS and I think the lingering symptoms are attributable to that and will probably be a life long issue. He may also be doing better due to the medications he is taking as well, finally finding the right blend...cocktail of meds..to take care of the symptoms.Christy Quote Link to comment Share on other sites More sharing options...
looneymom Posted April 1, 2014 Report Share Posted April 1, 2014 My son was diagnoised when he was 11. He will be 14 the end of this month. His POTS is secondary because of an underlying medical problem. I have read some articles by Dr. Grubbs that indictates this should happen. When my son went to MAYO, they told me that he should outgrow this during the late teenage years. So I am very hopefu. However I do know that for this to happen for my son, his underlying medical problem also has to go away because it is causing his POTS. Quote Link to comment Share on other sites More sharing options...
Freaked Posted April 1, 2014 Report Share Posted April 1, 2014 Apparently this does happen frequently, but bear in mind that people who've recovered are less likely to be on this board. Quote Link to comment Share on other sites More sharing options...
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