Ctat333 Posted March 11, 2014 Report Share Posted March 11, 2014 Hey everyone!Finally had my first appt today with Dr. Suleman. They took my vitals, did an EKG, and Dr. Suleman did a physical exam and took an EXTREMELY detailed history. He told me at the end of my appt that he is 99.9% certain that I have POTS and EDS (Type III). He also thinks there is a possibility that I might have MCAS as well. They have scheduled me for a huge amount of tests on March 18-20, and my follow up with Dr. Suleman to go over test results is the afternoon of March 20th. I will let yall know what the results are.The tests he has ordered are:ABM HolterLoop - not sure if this is correct or not, but it's what is on my paperworkTilt C TCD/PCO2, PFO - I know what a TTT is, but not sure about the rest lolQ-SweatQSTHokansonVNGEchoStress EchoCarotidVenous Doppler, AAAGastic Empyting StudyEEG, NCVSleep StudyMST & PFTHe has also referred me to a geneticist.The majority of these tests I will have to do some research on. I have heard of some of them, but definitely am not familiar with them all!While I have suspected this for a while, it's still a lot to process. I was really hoping that he could "fix" me, if that makes sense. Help me return to normal. Now I'm resigned to the fact that this is something I will probably have to deal with for life. While not completely unexpected, it was not what I wanted or was hoping to hear. Glad I have yall to support, encourage, and teach me through this journey.All the best,~ Alison ~ Quote Link to comment Share on other sites More sharing options...
Ctat333 Posted March 11, 2014 Author Report Share Posted March 11, 2014 Forgot to add that Dr. Suleman did the Beighton scale during my exam, and I scored a 9 out of 9. Those joints popped right out LOL Quote Link to comment Share on other sites More sharing options...
sue1234 Posted March 12, 2014 Report Share Posted March 12, 2014 Yep, he does a thorough workup! I must say since I saw him around 2009, he has added alot of more testing! I have had a few of those through other doctors since, like the sleep study and gastroparesis study, but he has added a few others to his repertoire(?). It sounds like you wouldn't get a more thorough evaluation anywhere else! Please do keep us updated on all your testing results. Quote Link to comment Share on other sites More sharing options...
IceLizard Posted March 12, 2014 Report Share Posted March 12, 2014 Thank you for keeping us posted. Hope you find some answers with him soon! Quote Link to comment Share on other sites More sharing options...
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