sideofsalt Posted January 15, 2015 Report Share Posted January 15, 2015 Mine was brought on by pregnancy but didn't appear until a year after weaning my child. I did suffer from a bronchitis a couple of months before the onset of symptoms though, so it makes me wonder about a viral connection as well. Quote Link to comment Share on other sites More sharing options...
dancer65 Posted February 3, 2015 Report Share Posted February 3, 2015 I had mild symptoms after developing hereditary alopecia universalis at the age of 12 along with excema, asthma, IBS. After glandular fever at 18 I had CFS and I have continued to progressively have fewer times of feeling well since my hysterectomy at age 46. Quote Link to comment Share on other sites More sharing options...
cbear1591 Posted February 6, 2015 Report Share Posted February 6, 2015 Unfortunately, I have yet to find out what is causing my POTS. My symptoms first showed up around puberty and have seemed to get progressively worse (I'm 23 now). I was diagnosed with POTS in August of 2014, so I am still trying to get to the bottom of it. I have an appointment with a neurocardiologist at Emory in Atlanta in April, so I'm hoping that will shed some light on the situation. Quote Link to comment Share on other sites More sharing options...
artsystacey Posted January 25, 2016 Report Share Posted January 25, 2016 I grew 6 inches in a summer age 9/10 - I started getting symptoms after that. I was so exhausted I'd almost pass out during class and I couldn't remember anything. Vision would black out several times a day and I didn't realize it was presyncope - I just thought that happened to people sometimes. I also have some stretchy skin and hypermobile joints, but I was never diagnosed/tested for ED. Quote Link to comment Share on other sites More sharing options...
Lily Posted February 2, 2016 Report Share Posted February 2, 2016 My POTS slowly sneaked up on me, rather than having a definite beginning. My plasma norepinephrine is extremely high on standing, but I also have blood pooling issues. Fortunately I can hold down a full-time job (college professor), but still. It would be nice to not feel poorly most of the time. At least I can work with my feet on my desk without anyone complaining. Teaching is a problem, though, because it is customary to stand and there is not enough room to move around enough to keep the blood flow going. The other fun thing is how POTS and ADHD interact. I feel poorly, and this quickly becomes distracting because of the ADHD. Quote Link to comment Share on other sites More sharing options...
MommaHelen Posted February 29, 2016 Report Share Posted February 29, 2016 Unknown cause- most likely mitochondrial disease. Sudden onset after an illness that lead to a long hospitalization for dd. Quote Link to comment Share on other sites More sharing options...
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