Viral Onset?

[Rebeccawithdogs]

Why do doctors assume if you improve, your P.O.T.S. was viral onset What kind of virus causes P.O.T.S? Where is the research that says it can be brought on by virus, anyone know? Or is this a theory?

[Bigskyfam]

They think mine was viral onset due to ruling everything else out....I read epsteinbarr virus especially. If short lived pots... How long or short of a course I wonder

[badhbt]

My Doctor told me that they always say virus when they don't know...haha

[davecom]

If you quite suddenly get sick out of nowhere and all known systemic diseases are ruled out, it's presumed a pathogen (bacteria, virus, fungi) is the cause. This makes sense since pathogens are the cause of most illness. Certain pathogens are also known to be triggers for system conditions.

[KareBear]

The docs never mentioned a possible cause of mine. They didn't seem concerned with that for some reason. It does run in my family though not as severe as my case. My other family members are functional.

[Chaos]

I think POTS is preceded by a viral illness in many patients which is where the whole "viral onset" concept began. Usually if they don't know the cause they refer to it as idiopathic rather than viral onset but every doc is different.

[autumn bloom]

I have had Vasovagel Syncope---was told I would eventually grow out of it (still waiting for that), migrianes, kidney stones, and endometriosis since my teens. I was diagnosed with chronic leukopenia and anemia by my hematologist and given multiple infusions of iron, various meds and had a bone marrow done. I am gluten free (for almost a year now and it has not made a difference), GMO free (another wholistic suggestion), and uterus free (the anemia became too difficult to battle with a never ending menstral cycle). I was told I had a "retro-virus." Although my white counts remain abnormally low, I do not get ill. I think the few white cells I do have are super white cells. I always thought the POTS diagnosis was just the FINAL diagnosis---I thought it just explained everything I have been dealing with since youth all thrown together in one POT (so to speak). I am new to this site. Wish a couple of the doctors I have seen in the past would educate themselves regarding this disorder. I have been dismissed time and again by doctors that are considered the "top in their fields."