andybonse Posted November 25, 2013 Report Share Posted November 25, 2013 So had my phone call with my doc since midodrine made me dizzy and worse.Doc wants me to try mestinon but after reading mlre about it I think not.Ive decided meds are not going to help and im on the edge mentally not and depression is kicking in. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted November 26, 2013 Report Share Posted November 26, 2013 Even though I haven't tried very many meds, I usually don't react well anyway, so don't feel I'm missing out on too much. But I am kind of in a hole like you are...I am, for the first time in almost 8 years of having POTS, really wondering if I will ever get some actual help and relief from my symptoms. I've always assumed I would feel better eventually, which I did last year at this time, but then I slid back into a deeper POTS hole. I don't know what to say but that I can empathize with your feelings. Quote Link to comment Share on other sites More sharing options...
Macca Posted November 26, 2013 Report Share Posted November 26, 2013 I have tried Midodrine and Mestinon. I had a similar side-effect with the midodrine, but I had pretty good results from Mestinon, it just took a couple of weeks for my body to adjust. So many of us a sensitive to meds and find it hard to find effective treatment, but please don't give up! It sounds like you have a doc who is exploring options for you and you just might have success with Mestinon. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted November 26, 2013 Report Share Posted November 26, 2013 Macca, what improved for you when taking Mestinon? Quote Link to comment Share on other sites More sharing options...
Macca Posted November 26, 2013 Report Share Posted November 26, 2013 Mestinon gives an improvement overall including dizziness, fatigue, tachycardia and seems to calm down the sense of sympathetic nervous system over activity. I really like it and there are plenty of posts from others in this forum with good experiences using Mestinon. Quote Link to comment Share on other sites More sharing options...
sue1234 Posted November 26, 2013 Report Share Posted November 26, 2013 Macca, did you have normal blood pressure or low b/p? Just curious, as I think it might help out with my slow gi issues, but I am hyper. I was thinking it might not be good for that, but maybe I'm wrong. Quote Link to comment Share on other sites More sharing options...
Macca Posted November 27, 2013 Report Share Posted November 27, 2013 Sue1234, my blood pressure varies a lot. It can be low, normal and high (sorry not very helpful). My neuro certainly felt that Mestinon would be good for slow g.i, but that hasn't been a significant issue for me. Quote Link to comment Share on other sites More sharing options...
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