galatea Posted November 8, 2013 Report Share Posted November 8, 2013 Would it be unthinkable to organise some sort of informal meeting? I’m not sure where it would be, but definitely somewhere comfortable where we could put our feet up and relax maybe bring some salty snacks.I know travel is hard for a lot of us, but it would be nice to share experiences. Quote Link to comment Share on other sites More sharing options...
Mermaid Posted November 9, 2013 Report Share Posted November 9, 2013 Hi Galatea, I think that's a great idea. I would be happy to help with any organizing. Barbara (Diagnosed POTS, NMH) Quote Link to comment Share on other sites More sharing options...
galatea Posted November 9, 2013 Author Report Share Posted November 9, 2013 Great! I suppose we’d choose location according to where most people live. We’ll first have to see how many people are interested. Quote Link to comment Share on other sites More sharing options...
andy271160 Posted November 9, 2013 Report Share Posted November 9, 2013 Hi GalateaNot having POT'S myself as far as I know. But diagnosed with dysautonomia neuropathy which bears some relation i think. Plus being new to all this I would of course be interested inmeeting people in the same/similar boat as me. I live in Leeds and rely on my wife to drive me everywhere as I am confined to a wheelchair.My specialist tells me that I am only one of two people in the UK that have the desease I am blessed with so of course I would love to meet up and compare notes/coffee/etc with anyone who has a clue what we are all going through and how isolated we can become.Let me know if anything developsAndy Quote Link to comment Share on other sites More sharing options...
millyaulait Posted November 9, 2013 Report Share Posted November 9, 2013 Such a nice idea, galatea. Quote Link to comment Share on other sites More sharing options...
E246 Posted November 10, 2013 Report Share Posted November 10, 2013 Yes, I would love to meet up. Its much quicker talking than posting and i have longed to talk with someone else with pots.I live in Newcastle but happy to travel anywhere by train. Any suggestions? Quote Link to comment Share on other sites More sharing options...
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