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Photosensitivity - Pots Or Autoimmune?


Kris4444

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This summer has been horrible for me. The slightest exposure to the sun and I get the butterfly rash on my face and my extremities swell, lower legs get a red spotted rash. The next day I'm exhausted and have major joint pain.

My rhematologist says it's not from my meds (even though hydrochlorothiazide says to avoid sun) and that he thinks it's my autoimmune disease. I have had very low positive ANA nucleolar pattern twice now.

Life is starting to really ****. I can't even enjoy the outdoors. Any suggestions?

Edited by corina
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