dmjl27 Posted September 20, 2013 Report Share Posted September 20, 2013 I have something somewhat similar (yet different). My stats do change during one of these episodes. Since I have a pacemaker, I feel more at ease about it. However, my doctor suggested I play around with my bed positions. Being a stomach sleeper, this was not an exciting plan. However, after several new positions and adjustments, I found that the blood was pooling in my legs while I was sleeping and causing me to be quite symptomatic. I started slightly propping my feet up a bit (and head up a touch, as well, which is already recommended for pots sufferers). The first night of doing this, it stopped. It's not 100% gone, but the worst of the symptoms are so much more bearable. I didn't even know this could happen while completely postural, but apparently, it can! It's worth a try sine it's a 'free' and easy alternative to yet more meds! Good luck! Quote Link to comment Share on other sites More sharing options...
DADofPotsSon Posted September 20, 2013 Report Share Posted September 20, 2013 My Son#2 started this in High School though it got worse in college, it went away for a few years and then returned at age 25. He actually began by waking drenched and in a near panic attack, but sometimes it even went into a full convulsion and even at times into a seizure and it was corrected by a low dose of toprol xl and a low dose of dylantin. He has EDS (H) NCS/POTS. It has been noticed that sometimes his feet were purple during this event. it normally took 2 IV's to get him to come out of it. The room temp. if high seems to be a factor.a sleep study was done and it was shown he had no sleep issues other than a infrequent Hypopnia event Quote Link to comment Share on other sites More sharing options...
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