andybonse Posted August 19, 2013 Report Share Posted August 19, 2013 Lately when standing my heart rate has only gone up say 15-20 beats for a week say.Tonight: sitting 120/66 hr 59 stood up still 5mins 127/77 hr 60.I mean I dont get it a few weeks ago it was going to 110-120?!I am seeing autonomic specialist this week what do I say? Oh I sometimes have pots but it goes for a week and then comes back!?!Arghh it doesnt make any senseUnless theres something causing neuropathy and my nerves heal then damage then heal?I never feel right not like im supposed to Quote Link to comment Share on other sites More sharing options...
Katybug Posted August 19, 2013 Report Share Posted August 19, 2013 Pots does fluctuate. Sometimes I experience tachycardia and sometimes not. Mine can change from morning to afternoon, day to day. I can leave the house feeling OK and get to the doctor's office 2.5 miles away and have an attack while I'm standing at the reception desk checking in. I don't think it's unusual and I think that's why the most definitive diagnostic test is a tilt table test because it restricts us from doing even small countermanuveurs that would change the numbers. Quote Link to comment Share on other sites More sharing options...
davecom Posted August 20, 2013 Report Share Posted August 20, 2013 I fluctuate an incredible amount. My first walk today, I went from 68 -> 91, then later today 60->113. Standing in place while peeing I was at 147! There are so many factors that go into it. Be grateful the numbers at least are getting better.I think when it comes to the doctor's appointment you have to be VERY careful about how you present yourself. Don't come off as anxious as much as you can. I would just present the facts in as cold and deliberate a manner as you can. I know thinking about the appointment and how to present yourself in its own can cause anxiety... but I would really try to be very calm in presentation and just say matter of factly your symptoms and that you have repeatedly seen your heart rate go to 110-120 just from standing, but other times it doesn't. You probably waited a while to get to this appointment. Don't let him dismiss you, but don't be too aggressive - I've found doctors don't like that. You need to clearly express you're not well, while not seeming irrationally upset... Quote Link to comment Share on other sites More sharing options...
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