andybonse Posted August 18, 2013 Report Share Posted August 18, 2013 Hello,When I stand I feel a headrush and my heart rate also goes up by 30 usually, I inflated the cuff once before standing then stood and it showed my bp drops for like 10 secs. But goes back up to normal after 5 secs along with my faster hr.Is this still POTS? Quote Link to comment Share on other sites More sharing options...
Guest Alex Posted August 18, 2013 Report Share Posted August 18, 2013 Andy,To the best of my knowledge the "criteria" for POTS is a sustained increase in HR during the first 10 minutes of assuming upright position. The BP fluctuations are not part of the diagnosis criteria.Hope this helps.Alex Quote Link to comment Share on other sites More sharing options...
andybonse Posted August 18, 2013 Author Report Share Posted August 18, 2013 Thanks,There's so many different things its mind boggling.I have an appointment with a top autonomic neurologist this week, hope he can help. Quote Link to comment Share on other sites More sharing options...
Guest Alex Posted August 18, 2013 Report Share Posted August 18, 2013 Fingers crossed the new dr will be able to help you. Let us know how it goes. Quote Link to comment Share on other sites More sharing options...
andybonse Posted August 18, 2013 Author Report Share Posted August 18, 2013 I just did a standing test,Sat down was 120/60 hr 66Stood up, after 10 mins it was 110/63 hr 90My legs were slowly getting purpler as if they had blood been pulled into them and also my chest felt like not enough blood!So really its not classed as orthostatic hypotension, my bodys adjusting normally when I stand its asif some of the constriction isnt working so it drops.Meh, guess Midodrine will sort that maybe! Quote Link to comment Share on other sites More sharing options...
lejones1 Posted August 18, 2013 Report Share Posted August 18, 2013 That quick drop when you first stand up is called initial orthostatic hypotension and it's benign. I get it too and think I've had it since middle school (I almost always get lightheaded when I stand up). That was 10 years before POTS started and a lot of healthy people in my family get it as well. It confused the first doctor who saw my TTT results but another doctor told me it's actually not uncommon in young people, especially if they're tall and thin. I don't know if you fit that category but it's probably still a possibility. Here's some more info: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC3029466/ Quote Link to comment Share on other sites More sharing options...
andybonse Posted August 18, 2013 Author Report Share Posted August 18, 2013 Thanks, I do actually, I'm 6ft1 and thin so I guess thats me in there ha.Thanks for that info cleared up a concern on mine Quote Link to comment Share on other sites More sharing options...
davecom Posted August 18, 2013 Report Share Posted August 18, 2013 Maybe it was just a good moment today, but technically you didn't meet the 30 beat threshold for POTS... and those blood pressure numbers are good! You've really improved since you first posted a couple months ago. Quote Link to comment Share on other sites More sharing options...
andybonse Posted August 18, 2013 Author Report Share Posted August 18, 2013 Thanks Dave,Before exercising it was going up 40 beats. I guess I will see how the future goes.Are you in the US or? Quote Link to comment Share on other sites More sharing options...
davecom Posted August 19, 2013 Report Share Posted August 19, 2013 Yeah. I lived in the UK for a couple years when I was younger though. Great country, and great folks. Quote Link to comment Share on other sites More sharing options...
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