Are Pots Patients At Increased Clotting Risk?

[Freaked]

Started getting pains in my legs and hips lately (have pains everywhere else, so why not; haven't been tested for things like lupus yet, but might be just fibro or something) and it just got me wondering. I've been very sedentary since this all started 5 months ago. I know that many potsies experience blood pooling in the legs, have blood vessel constriction issues, poor circulation to the extremities and can't walk around much. These are all very much deep vein thrombosis risk factors when untreated (and a lot of us go untreated for quite a while).

Has anyone's doctor discussed this with them? I can't find anything discussing it so far, though haven't checked the medical journals, but I assume if we were at a significant increased risk of pulmonary embolism from DVT it would have come up?

[MomtoGiuliana]

I've asked my specialist about this and he says the pooling in and of itself is not a risk. I believe inactivity can be a risk factor however. It is important to move around from what I understand--eg perfectly healthy people can develop clots during lengthy air travel.

[spinner]

has your potassium been checked for periodic paralysis?

Are you hydrating sufficiently with electrolytes to prevent cramping?

But with POTS it wouldnt surprise me if clotting is more likely. I came

up with a blood test one time indicating I had a clotting enzyme go positive.

I never did anything about it. Didnt get worse.

I excercise 6 days a week

[louloutinks]

I was told by the autonomic unit, if you have pots, there is much less chance of heart attack, stroke or blood clotting due to the lability of bp.