jaddico Posted July 1, 2013 Report Share Posted July 1, 2013 Hi all,I'm new to this forum. I wasn't sure how many of you have neuropathy in addition to Pots and other dysautomonia symptomsI'm having a work-up for small fiber neuropathy due to abnormal QSART testing and history of dysautonomia symptoms. I have history of Pregnancy induced POTs. My results for skin biopsy were normal for my calf and thigh but the pathologist states that my specimen was "unusual and extremely high". highest for thigh is 17, normal 8, my was 28. My numbers was higher than their highest level with Therapath and it also states that it maybe "unusual form of small fiber neuropathy". I was wondering if anyone here has had anything similar. Usually for small fiber, the level are low, 6 or below. Thanks Quote Link to comment Share on other sites More sharing options...
Natops Posted July 1, 2013 Report Share Posted July 1, 2013 I just had my skin bio .... I havent yet talked over the results with my doctor. Mine said - "nerve fiber density is within normal limits but there is extensive fiber segmentation and some nerve fiber swelling". So Im not sure what that means. "Extensive fiber segmentation" ? I had a 5.1 (which was marked below average) and i got 11.6m and a 14.5m On one part of the report one doctor said everything was normal and then at another point it said "the density of nerve fibers sweat glands demonstrate length- dependant neuropathic process affecting post ganglionic autonomic nerve fibers". So that doesn't sound normal. Quote Link to comment Share on other sites More sharing options...
corina Posted July 1, 2013 Report Share Posted July 1, 2013 Hi Marigold, welcome to the forum! Quote Link to comment Share on other sites More sharing options...
jaddico Posted July 3, 2013 Author Report Share Posted July 3, 2013 Thanks Corina, I'm happy to had find this wonderul forumNatops,It does sound like yours is abnormal as well. I had my testing done with a neurologist in Virginia Beach , VA. I'll be following up with Dr Chemali in September to go over my results and care since my neurologist doesn't know what to make of it either. Google your results. There's some info out there on yours online. Mine on the other hand...zero. I called therapath and they told me that unusually high can also represent a disease process but I haven't been able to find anything about too high numbers. I think the test looks at 1. density fo the fibers, 2. appearance and 3. size of the fibers, so you can have a low, normal abnormal density fibers with appearance and size of the fibers being something else. I will get some answers when I see Dr Chemali in September. Thanks for your response Quote Link to comment Share on other sites More sharing options...
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