spinner Posted June 21, 2013 Report Share Posted June 21, 2013 We talk about heat intolerance here, which is my BIGGEST obstacle to living a normal life. My endocrinologist suspects possible periodic paralysis which is emptying of potassium out of muscles and canbe dangerous. Today I decided to walk slowly in the shade for 45 minutes at a slow pace. Im always testing my limits trying tosee what i can do.I developed leg cramps, weakness, dizzy, and barely made it home to the AC. Luckily ive got the megadoseof potassium from my doc at cleveland clinic. Also drank down a Dr. Oz gatorade homemade, and hydrated.Anyone else dealth with this? Quote Link to comment Share on other sites More sharing options...
bjbens Posted June 21, 2013 Report Share Posted June 21, 2013 I can so relate to your experience!! This week has been horrible due to heat intolerance. I did some gardening work for a friend in need - in the muggy, hot sun - earlier in the week and have paid for it ever since with the same symptoms you describe. I feel for you! It can be debilitating. Do you have supportive people around you who "understand" and encourage you to care for yourself? I, too, take a potassium supplement (along with iron, calcium, etc) and get foot and leg cramps, nausea, and aching bones/muscles when it gets low, but can't say I've ever experienced paralysis. I hope the megadose of K+ helps and you're feeling better soon! Stay cool! Quote Link to comment Share on other sites More sharing options...
brethor9 Posted June 21, 2013 Report Share Posted June 21, 2013 all I can say is YES and hang in there! I even get remotely hot now and I crash completely......so sick of not being able to even enjoy a 25 degree day without feeling like I am going to die my potassium levels are fine so I chalk it up to being a autonomic or MCAS issue, either way I am unimpressed! feel better Spinny Bren Quote Link to comment Share on other sites More sharing options...
spinner Posted June 21, 2013 Author Report Share Posted June 21, 2013 Thanks, blessings to you all. I suppose they have some expensive test or another that might determine this, but ive been through a hundred of them, and the endo just gave me a monthly megadose for a year. I hadnt been taking them recently because i rarely get into the heat at all, but every now and again i like to put a sweat on and make sure my sympathetic NS is working right and that im sweating (was a problem previously).Well, big mistake, but cant live life in a bubble. The first sign of all this is a sudden immediate cramping in the low extremities apparently. One more activity to avoid unfortunately, but its all a big learning experience what works what doesnt. Im always pushing for a normal life back and a lot of timeshit a wall. Quote Link to comment Share on other sites More sharing options...
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