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The Hopkins doc is Howard Levy and the other Baltimore genetics doc is Clair Francomano. They are both considered world leaders in knowledge and diagnosis of Ehlers Danlos Syndrome. I'm assuming EDS is what you guys are looking for re: geneticists. I see Dr. F and she's awesome. I hear Dr. L is just as awesome. I can vouch that Dr. F is worth the trip if you truly believe EDS is an issue. You should be prepared for quite a wait to get in to see them, so if you are willing to travel, the sooner you make that decision and contact their offices the better.

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