SaraC628 Posted February 3, 2013 Report Share Posted February 3, 2013 Hello,I was just referred to Dr. Hiner at Froedtert in Milwaukee. I am getting really nervous as I have seen a handful of bad reviews regarding him. I have been diagnsosed with Orthostatic Intolerance and mine is bad enough that I am unable to drive or work. Even when I don't feel lghtheaded, I get so overwhelimingly tired that I feel like my body is just going to stop. I am on Florinef and even that does not help. Well, it helps, just not enough to make me functional again. I only have a couple of really good days every few months. I also have a few underlying things that keep popping up (reactive hypoglycemia, chronic sinitus, low iron, low vitamin D). I am in the proccess of filing an appeal related to my long-term disabikity denial and I have applied for social security, at age 30!! I really want to know what your experiences have been with the doctor. Does he have a good bedside manner? Was he able to help improve your symptoms? Does he understand that this can illness can cause disability? I have been struggling with this for more than a year and a half and have been to at least a dozen doctors. I am really scared that if Dr. Hiner does not help me or understand what I am going through that I have no where else to turn. Any information would be greatly appreciated.Thanks!! Quote Link to comment Share on other sites More sharing options...
MomtoGiuliana Posted February 4, 2013 Report Share Posted February 4, 2013 I would just like to remind everyone of the following forum rules, should you respond on the forum:Doctors and HospitalsYou agree to refrain from making disparaging remarks about hospitals or medical professionals on this forum and to refrain from naming doctors or hospitals when elaborating on negative experiences.More elaboration on these rules can be read at the Forum Rules (see link at bottom right of this page). Thanks everyone! Quote Link to comment Share on other sites More sharing options...
SaraC628 Posted February 4, 2013 Author Report Share Posted February 4, 2013 Let me clarify as well...I really am hoping to see some of your POSITIVE experiences. I want to be able to walk in with a positive attitude and feel more relaxed about the appointment. Quote Link to comment Share on other sites More sharing options...
bkweavers Posted February 5, 2013 Report Share Posted February 5, 2013 I'm waiting to hear from others as well. My daughter was a patient of Dr. Barboi and for now, we've been seeing Mary, nurse practitioner. Is this the doctor taking the place of Barboi? My daughter had an appt. with Mary last week and Mary sounded very positive about the new doctor coming but I can't remember the doctor's name and Hiner doesn't sound right to me. I know they were getting more than one doctor though in place of Drs. Jeradeh and Barboi.Brenda Quote Link to comment Share on other sites More sharing options...
SaraC628 Posted February 5, 2013 Author Report Share Posted February 5, 2013 Hi techr4k,Dr. Hiner is not the new doctor. Based on the research I have done it appears that he focuses on movement disorders, particularly Parkinsons. I believe he has been a Froedtert for a few years. When my appointment was scheduled they did not give me an option of doctors. I know that my local neurologist sent the referral asking that I be seen by an autonomic specialist. And I believe Dr. Hiner had to review my records prior to an appointment being scheduled. However, I was able to get in to see him surprisingly fast. About 10 days from the date it was scheduled. My appointment is on Feb. 12th, I will try to remember to let you know how it goes. Quote Link to comment Share on other sites More sharing options...
bkweavers Posted February 7, 2013 Report Share Posted February 7, 2013 When I checked him out on the Medical college of Wisconsin website, it said that one of his specialties was autonomic disorders so I guess that's why I thought he was the new doctor that just started a week ago.Hope it goes well. I know how long it took us to find the right doctor. We actually ended up right where we had started - at Froedert! I still miss Dr. Barboi but hope and pray that people in the Chicago area are reaping the benefits of his knowledge and expertise!Brenda Quote Link to comment Share on other sites More sharing options...
trublukrav55 Posted February 7, 2013 Report Share Posted February 7, 2013 Yay! Hello fellow Wisconsinites!! I have been having trouble finding a doctor that didn't just dismiss me as another person with a vague pain/fatigue/etc. disorder!! I haven't heard of that doc specifically, but the bills that come from Froedtert are enough for me to stay away. I can't find someone who doesn't feel uncomfortable saying, "you know, I don't know what's going on, but I'll stick it out with you until we get this under control..." Have you found one of those? I feel like WI needs to step it up with the specialists outside of the Medical College! Just happy to see others from WI on here though (: -Ali Quote Link to comment Share on other sites More sharing options...
DoozlyGirl Posted February 7, 2013 Report Share Posted February 7, 2013 Hello cheeseheads,Dr Hiner has trained in autonomic, but from what I understand only works part time in the autonomic clinic. The new autonomic neurologist is Dr Juan Figeroa. I just got an email that Wednesday, March 6 from 6-8 in the Community Conference Center on 87th and Watertown Plank Rd, they are having Dr. Juan Figueroa, Autonomic Neurologist speak to the Autonomic Support Group. This would be a great time to check him out and meet him. I plan to be there for that very reason! And yes, I miss Dr Barboi too. He not only nailed my autonomic neuropathy diagnosis, but later recognized my mast cell symptoms as MCAS!! Hope to meet others at Froedtert's Community Conference Room (in the building behind the healthclub, overlooking Eddie Martini's) on Watertown Plank Road at 87th Street. Take 87th St directly into the parking lot on the north side Watertown Plank road. Lyn Quote Link to comment Share on other sites More sharing options...
SaraC628 Posted February 7, 2013 Author Report Share Posted February 7, 2013 I got really lucky when I went to my local neurologist, well kind of. I went diagnosed for months and had several doctors tell me that it was stress. When I went to the neurologist she did a brain MRI and drew a few labs and then immediately wanted me to be seen to have autonomic testing at Froedtert. She has told me that all of my symptoms are due to the OI, even the things that I hae thought are crazy. However, when it came to filling out disability paperwork she wrote that she had started me on Florinef and that I would be completely functional on that medication. She had to take me off of it within two weeks. I was able to start it again, but it has not had the results she had hoped for. Then when I called and explained this to her nurse after my long-term diasbility was denied based on this, she refused to fill out a different disability form my attorney. I feel like she understands what is happening, but I am really confused about how all the paperwork was filled out. Quote Link to comment Share on other sites More sharing options...
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