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Dr. Low, Grubb--who else


PattiL
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Hi everyone,

My daughter Chrissy, who's 19, seems to be having more problems lately with her POTS. She's presently only on florinef twice a day, but she says it almost feels like she's not taking it at all lately.

This last sinus infection of hers is lasting over a month and she's been on two treatments of antibotics, still isn't getting her strength back. Dr. Grubb is who she usually sees. She was suppossed to have an appt. in Feb. but they cancelled it b/c of his cancer (understandably). My son sees Dr. Chelmsky in Cleveland and he has to wait until Sept. to see him. Does anyone have any suggestions on who would be their next choice of Dr.'s. I've read a couple of posts where people have been disappointed with Dr. Low at Mayo, who's next? We'll go anywhere. I know we'll have to wait awhile for an appt., but I might as well make one now. Will Grubb confer with our reg. Dr. to figure out what to do next? I've left a message with Grubb's office. Thanks for any input. Patti

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Have you looked at the list of specialists on this site to see if any of them are close by? Would you consider trying a run-of-the-mill (so to speak) electrophysiologist in your area? Generally they are the most knowledgeable specialist when it come to POTS. You might not have to wait too long to get in to see one.

Katherine

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An electrophysiologist is a cardiologist with specialty in the electrical function of the heart. They are often knowledgable about POTS. My electrophysiologist has particular expertise in autonomic dysfunction and studied and cared for POTS patients for years at Johns Hopkins. When my sister who was living in Georgia began to develop symptoms I asked him for advice and he gave me the names of two electrophysiologists in her area. She saw one and was quickly diagnosed with POTS and began treatment.

Obviously some are going to know more about the condition than others, but most should be much more knowledgable than a general practitioner or another kind of cardiologist.

Hope she can see someone who can help soon.

If you want to tell us generally where you live, someone on here might be able to recommend their physician to you.

Katherine

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